Hi everyone,
Out of nowhere, like so many it seems, I have recently found out I have prostate cancer.
A PSA test came up elevated (4.6) maybe 6 weeks ago, and it has all gone very quickly from there. No symptoms at first instance (though I am now questioning any twinge and pain) - one GP suggested a test as I was 45. A second test came back much the same. Then an MRI spotted a lesion. A biopsy - not fun! - followed quickly. That was scary, but the urologist was sure (due to age and health and zero symptoms) that it wouldn’t be cancer. But he was wrong. A mixture of Gleason 7 and 8 - so an 8 it is. Pet scan next. It’s very bewildering, unsettling, and frankly terrifying. i’m very lucky to have an amazing wife and parents, and an employer who is being very supportive, but I guess I’m just looking for anyone who has been through this - and ideally has some positive news to share. I feel very alone at my age.
Hi Smac43feff / some quick and useful replies from the gang so far : no wonder your wife was in tears: I remember, so well, that in the early days after diagnosis the only thing that made me emotional was thinking about how caring and friendly the people in our group website were. That’s why I’m still here, trying to help people, over two years later. AW
Hello Smac43feff Sorry to hear you have started this journey. The diagnosis steps are difficult for you all as the bits of information come together relatively slowly. It’s only natural to worry when waiting for results. The mind can unfortunately sometimes fill the gaps with worst-case scenario thoughts. But I would suggest the positives are something has been found now and not later, the investigation work is continuing and you are in very capable hands on a well trodden path. Any treatment you are offered will be amongst the best available anywhere in the world. And you are amongst friends on here who really do understand what it’s like - have been through it and have come out the other end OK.
Hi Smac, I’ve just completed RadioT and HT for PC discovered this time last year with a PSA of 9.1 and with lesions. Yes it is a shock to be told but my only question was ‘ is it treatable’? I was told yes and my blood test 2 weeks ago showed my PSA at 0.6. So stay strong and be positive and like so so many of us you’ll get good treatment and see yourself through these current dark days of worrying. With best wishes
Thank you david. It’s so good to be able to share what I’m going through and hear from others.
Hi Smac,
The lads here have pretty much covered everything, but I will say Your mind can play games with You, after my initial diagnosis before my psma pet scan I started getting pains everywhere, hips ribs etc, some nights keeping me awake and needing mild painkillers, I was convinced I had bone spread, and thankfully haven't... Like most have said, Your psa is fairly low and You'll have plenty of options with curative intent ahead of You...
All the best...
Jay
Thanks Jay. You’re right about the mind. Totally spiralling. The wait for results is hard. It’s a call I don’t want to get. But not getting it is also unsettling.
Thanks for the lovely reply. I really appreciate everyone coming back so quickly. Sorry you are all here but happy to have met you.
Sorry to hear of your prostate cancer. I received that same news a year and a half ago and understand your feelings right now! I did a lot of research on the topic and as i told many people “ i learned more than I ever wanted to know”.when you first fine out you have prostate cancer it is a lonely feeling? You want to be strong and fearless but you have fears about how this may change your life. That can cause you to be angrey it happened, worry about how it may affect you ability to “ function” like you used to, and embarrassment for people to know because of the well known sides effects such as ED and incontinence. I understand! But you primary focus has to be curing the cancer! That has to take precedence over everything else! I am a survivor of prostate cancer, have had a radical prostatectomy and also experienced all those feelings! BUT, I survived! When I began my journey I had a million questions! Please feel free to ask me anything! Some questions may seem “too personal” but they are not!
Let me know how I can help and encourage you!
Bill
i have under gone the same journey
and after having a full prostatectomy by robotic surgery, and now healing it was the cure that became my focus. Having said that the known side effects have not beem an issue
stay positive it really is important. The medical care has improved so much and the procedures are continuing to improve the out comes for all
best wishes on your journey
Thanks for your reply! I too had a full robotic prostatectomy on October 22 of 2025. If you are further along in your recovery I would love to get you opinion on my recovery and just how long it takes!
Thanks,
Bill
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