Says on my computer, wish I had know before,

  • 6 replies
  • 126 subscribers
  • 621 views

Something like that, first thing I would like to know is why my doctor, on examine me said the lymph nodes in my groin, after telling him I experienced pain when having sex, he had with him a nurse training to be a nurse specialist who he asked to examine me as well, she did and said she couldn't fell anything, Doctor tells me it's okay you can get dressed, thank you if you experience any more pain do come back and see me, that was in December, I fell down icy steps went to doctor who sent me to a physiotherapist who said I can only treat your, hip your knee or ankle, er it's my leg, she examined me lyingon the floor!!! gave me a piece of paper which she had written an exercise for me, 20 times up the stairs left foot up right foot down 20 times a day, week later back at doctor who said there might be something else going on, didi a digital examination, said you have lump on prostate, took a blood sample, this was Thursday morning, Friday he called and asked me to come down to surgery. 

There he told me my PSA had doubled in 18 months from PSA 3 to PSA6.1.

He had made me a hospital for the following Tuesday, where Urogist examined me with same results as doctor, the  things happened fast Back up next day for MRI, from which they said I had  lump outside my prostate near my rectum, two days later I had a biopsy, which came back as positive, cancer 70% of my prostate. another scan in the afternoon which I was told it hadn't spread anywhere else, more tests they upgraded my score. they  told me it would be curable or give me long term survivability. 

At the week end I talked with the wife about having treatment or not, she said have the treatment.

I was started on hormone therapy in may and given tablets to take to stop tumor flare, this is when I started to feel not to good.

 later I went back to hospitals for various tests in preparation for radiotherapy, no tattoos, which was a disappointment, drank 600ml of water, told  it wasn't enough and was given another 600ml

Back to hospital at the start of October, staying in hospital accomodation, breafast and lunch but no evening meal, told to buy it in and get deliveroo to bring it, accommodation had no cooking facilities apart from kettle and microwave, so sister and hubby came along with a load of frozen meals, home at the week end but that was the only time, bus driver stopped the bus so I could jump off for pre in the bushes, my luck to get on a long distant bus with np.working loo.

Radiotherapy started a 9 oin the morning, there were 8 or 9 sitting there when I arrived, not all with PC, in the afternoon then nurse said I had to drink 1.3 litres, everyone else looked surprised, me too, your bladder is larger than most, missed 5 days due to wind so treated end first week in December. the worse part? the hormone therapy mess my head up, some days I was fine, some days I was down, weird and sudden mood swings some amusing other times not so, we were gave PV panels fitted, scaffolder arrived and said we have to drill holes in the wall, I told you won't, you can go away, but not as polite as that, he came back 2 days later and I apologise, he said that wasn't the worse he had been told to do and laughed

They told me I would have my PSA checked ever three months but would tell.mr the results unless something was wrong, gulp. The ITC at a medical centre, some 18 miles from my house, my GP is less than 5 minutes from my front door, but heh ho they can't do it as it comes from a different budget, first reading 0.146, doctor says negligible, all reading since have been the same, so now I've got the last Hormone at the end of the month and the last 3 monthly PSA in January, then 6 months afterwards. 

Have I been cured? who knows and he's not telling, at 77yo my survival has been quite amazing, out of a family of 9, at 77 I am the longest living survivor, my youngest sister 62 and is going through the same mental anguish that I went through at that age, why me, out of 7 children my life has been physical and wild at times, motorcycling from the age 13, still got one, but only out on it twice this year, army twice, glutton for punishment, rick climber and skier, worked for 16 years on a Ski lift, cold wet and fun. 

Now 77+ PC has knocked me off my feet tired and drained of energy, our Dalmatian has pulled me over 8 times, one flat on my face in the mud like some cartoon character when standing up. walk him and the other rat, well cross between collie and collie, we did have a 17 yo Collie, the love of our lives but he collapsed one morning when I had him out on my own, I sat with him for about an hour and managed to get him back up, three years ago I could have picked him up and carried him own, today 10kg is about my limit. 

I go to my doctor, because I have a few other problems, joints that sound if they are popping in and out, a neck that cracks which my wife can hear across the room, hand that just have weird problems, each time I visit the doctor I say is this old age, she just smiles, never saying yes or no.

I do wish they would teach us about getting old when at school, foretold is forewarned, I might have been a bit more careful, got a job as a civil servant.

But better joined up communication with our local NHS in Scotland would help, we do not have access to our records now as the rUK has, no NHS app for us.

Bit of a long ramble, but someone should have told me, perhaps earlier along the way of life's road. 

The therapist department attached to the ITC gave arranged for me to have 7 weeks resistance training at a local gym, 6 of us in a room in the gym, 5 elderly ladies and me, one on enter the room welcomed me as a long lost friend, when I left the army to work on the ski lift I was given a 3 bedroom house, free it was electricity and oil all free, but there was no furnishings, that was up to me, the pay was nearly three quarters of what my army pay had been, so nothing to cook on, after work I used to jump on the motorbike, all year round no car, and run down to a local hotel, after the meal I was sitting talking to a fellow worker, when a younger lady asked me my name, Cyril, she said I'm Jennifer, I said I didn't want to play, the guy next to whispered I would, you don't say no to Jennifer. play with her a few times but work and life we didn't see each other again until the room on the gym, shut down Cyril and enjoy yourself, gulp. 

From 12 and a half stone to less than 11, lifting 30kg just over two years ago to struggling with anything over 10kg.

But I am 77yo, still enjoying life, still walking the dog, built a block wall that room me 3 months, doctor said DON'T, I've always found it hard to listen to women, the wall is finished. life is to good to miss it. 

If you have got this far thanks, I apologise for spelling and everything that might be wrong, I hate Mr Google.

  • Hi Safeways,

    Might have been a bit boring for you being a civil servant.  Seems to me that you had much more fun doing the things you did instead,  Enjoying life is what it's all about & seems that you are still doing so - long may it continue.

    Best Wishes

    Brian

  • Hello  

    You should Self Publish your life story -it sounds interesting.  There's so much s*it on the internet you are far better off being educated in the University of Life and it looks like you already have a 1st class degree.

    I am 70 - over 3 years into what looks like life long Hormone Therapy - but life is good - like you I "lost" my 17 year old border collie last year. We have replaced him with a 6 year old ex racing greyhound and he's helping to keep me fit with the walks.

    Knowing what I know now - yes I wish I was 16 again........

    Join me in growing old gracefully.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thanks, my doctor raised her eyebrows and then smiled when I said I get on my motorbike and feel like I'm 17 again.

    Cyril

    Safeway's because I still wear a Safeway's t shirt, nice and warm and worries the wife when I threaten to take my pullover off and walk into Morrison with herJoy

  • I have to disagree with you on 3 points from your post Millibob (Brian) - me playing devils advocate here.

    I'm glad I'm not 16 again with all the hassle that goes with being a teenager.  Growing up in the 60's was so much more fun & without the pressure kids seem to want to put themselves under today.  Far better being older, having been there & done things already.  

    Growing old gracefully?  Nah, much prefer disgracefully as so much more fun.

    You can never replace a dog - they are all unique with their own quirks & each one is part of the family in their own special way.  I'm glad to hear though that the new dog is keeping you fit but I bet he can still chase a rabbit much better than you Wink

    Best Wishes

    Brian

  • Hello Brian ( 

    1 - I would love to go back to the 60's.

    2 - I am very graceful - until I fall over (again).

    3 - The new dog had been in the rescue centre over 500 days - he's black and no one wants to rescue a black retired greyhound - he's cute in his own ways and is just finding his feet. When he has the "zoomies" no one can catch him!!

    Life is for living and at 70 I am enjoying it.

    Kind Regards - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • I can definitely agree with growing old disgracefully, I turn 70 next July and fully intend to try to keep going that way as long as I can. 

    Unfortunately I'm not keen on dogs (never had one) but I do think I'd give being 16 again a go - but with the advantage of knowing what I know now!

    Derek.

    Made in 1956. Tested to destruction.

    Community Champion badge
    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm