Just diagnosed

Cader28 said:

Your words made my wife cry...but in a good way!

This is very much a couple’s disease.  You will deal with it together.  Let’s hope that your histology is not too aggressive and this entire episode can be consigned to history for you both. That bone scan still has me thinking.  Let’s wait for the Gleason score and see what the cancer is up to.  They may want to take a second look.  Fingers crossed. AW

By the way, what did your MRI report say?  What was the PIRADS score and what was seen on the scan?   AW

So far had blood test for PSA 77, full bone scan and biopsy I've not had results from. I'm on antibiotics as when doing biopsy the urine showed signs of infection. The bone scan showed scelrotic patches particularly on my right hip. So from zero tablets to HT pills, antibiotics and a bladder emptying pill ... Oh and paracetamol when I need. Hey ho! 

Yes am 4 days in and injection sorted for 10 days time. This alone is helping us feel we are getting back some control and things are happening! 

Cader28 said:

I maybe hoped that the high PSA was the Prostatitis back and the hip damage due to something else e.g. arthritis but consultant pretty certain that the link is PC going to my hips.

I’m with you on this (what was your PSA with the last bout of prostatitis?).  It’s good that you’re already on bicalutamide tablets and going into hormone therapy: an excellent precautionary approach.  However, I do think that your consultant is a bit premature with his diagnosis without having the MDT biopsy report analysis and Gleason score to hand.  I do hope that I’m not giving you false hope - that’s not my intention- but this is an unusual sequence.  A the good side, it means you’re already into treatment (that PSA of 77 would spook anyone), but your consultant must have REALLY clear MRI and bone scans to give such an early verdict.  That said, I think it’s probable that you have prostate cancer, but the jury is out on its T staging.   AW

I think I've accepted it to be PC but when I get biopsy info no doubt I'll be back here! Thanks again, G

Thanks alpine wanderer.  The thing that set me back was the perennial invasion reading as it wasn’t mentioned when I got my results   After a few dark days I am now  feeling more positive knowing that there are lots of treatments  for the various aspects of pca  I realise that the Gleason score is the overriding factor     Thanks.  Appreciate your reply’s  

Perineural invasion (PNI) : in one study, PNI was found in approximately 90% of radical prostatectomy specimens, so it’s considered quite common.  However, there exists controversies about whether PNI has prognostic significance toward cancer malignancy.  This is because, after treatment (removal or radiotherapy) a dead cancer cell can do no more harm.  if no treatment is given, then PNI cancer cells proliferate around peripheral nerves and eventually invade them.  That’s why PNI is a strong indicator for treatment and not active surveillance.   AW

Thanks for that info.   Simon