Hi, it would seem that I have Radiation Proctitis which is rather unpleasant. I wondered if anyone on the forum who has a similar experience has any advice or a story to share. It's ironic but before radiation I was on the throne every morning at 0700am regular as clockwork. This changed after the radiation and there has been a progressive deteriorating situation.
Hi C&TUS,I had/have radiation proctitis, nearly 3 years now my symptoms, constipation, painful bowel movements, rectal fissures and bleeding, though pretty bad for a while, are almost a thing of the past now, like you I was as regular as clockwork, then I could go days without going which is not nice, enema time lol, but through exercise and finding the right diet for me I go once or twice almost every day, an occasional discomfort and no fissures for over a year, I do bleed most days, almost certainly from the bowel and self medicate with docusate and movicol as needed,
Eddie
Eddiel, Sorry to hear that and thank you for taking the time to respond. By exercise do you mean walking and could you provide some hints on diet? Thank you very much
Exercise is walking predominately, 7,000 steps daily, swimming twice a week and a light exercise group once or twice a week. diet is just a simple healthy one, I eat smaller meals but more often, i start and end the day with yoghurt, real Greek is best, and fresh fruit, I don't eat processed food, and curry's and spicy foods are less so, and not as often, but drinking plenty of water is very important, as is not forcing your bowel motions.
Eddie
Ha ha, excepting the exercise classes I am pretty much there. Although I do like a curry. Once again thanks. Oh I also eat porridge with my yoghurt and fruit for breakfast.thanks again
your welcome, It's mostly common sense and patience, which you already have. anyway I have a 345 mile drive to do now, that won't help the bowels lol, bet wishes.
Eddie
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007