PSA tests after radiotherapy and during ongoing hormone treatment.

  • 2 replies
  • 124 subscribers
  • 551 views

I am now nearly a year into my treatment for prostate cancer, the radiotherapy went okay apart from having to drink nearly a litre of Oceanwater in five minutes every day and missing three days because of wind.

My GP's surgery has done all my PSA blood tests since being diagnosed.

I have received a letter that tells me I have to attend  my local ITR for PSA tests every three months for the next two years before considering to change the frequency.

They tell me the results will come though a computerised lab reporting system and they will only be in touch if they have any concerns or if I am happy to change the frequency.

Does that mean I will be kept in the dark about my PSA levels? I'm beginning to think our health board is more interested in computerising just about everything.

I have not seen my locum consultant face to face, just three 10 minute "near me" video meetings. 

I intend to talk to my GP, that is if I can get a appointment 

  • Hello  

    You are doing fine and on the normal road to recovery. After Radiotherapy PSA testing is routine and follows a pattern every 3 or 6 months - I was every 6 months as I was on 6 monthly injections.

    I am in Lancashire and under The Christie (a specialist cancer hospital trust). Every time I have a routine PSA test the results are e-mailed to me and my GP the following day and appear in my NHS App. As my last results showed an increase in my PSA I had a telephone call and a meeting to discuss the results. I have 2 dedicated nurses and I have their direct line - I can ring them with any questions, and a super service called PEASS (Prostate Easy Access Self Service).

    I see no reason why in Scotland as they have a computerised lab reporting system they don't copy you into the results. As they are YOUR results YOU are entitled to see them. I agree - a word with your GP here.

    Let us know how you get on.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi   

    we are also in Scotland and our GP practice wasn’t happy doing my OH bloods . They actually wrote to his consultant and he replied that a NHS agreement was made that GP practices are duty bound to undertake this work . ( if you need further information I can look out the letter ) 

    you should be able to opt out of this computerised system I presume as you would need to sign something.  

    As OH gets pretty uptight getting his PSA done as they initially said they would get in touch if any issues . He  now gets his bloods done on a Monday and we call the Oncology Nurse at the cancer centre and she gives him his results . Still needs lots of reassurances as he is not in a curative pathway. 

    I totally agree about our health board it’s all about stats not humans . 

    best wishes 

    Liz & OH xx