Aberaterone

Hello Liz and OH (johnam) 

The "2 years" could well be to see how he gets on with it and how his PSA reduces and stays down. You were on that fine line curative/not. It may well be a case if all is well after the 2 years lets withdraw treatment and keep a check on his PSA as the RT/Aberaterone may well have done the job.

Just my personal thoughts and not being medically trained it makes me wonder. I do think it's a case of how he gets on with the treatment.

I do hope he's Ok after the 2nd fraction of RT.

Best wishes - Brian.

Good morning Liz & OH.

I think the 2 years comes from a Stampede trial which showed considerable benefit when Abiraterone plus prednisolone was added for 2 years to men who were given local radiotherapy. Results were published in 2022.

https://pubmed.ncbi.nlm.nih.gov/34953525/

Hope your OH is ok after his second round of RT.

Morning Brian, thank you for the message . He’s still going his walk but having a nap . His skin looks bruised on his tummy . Other than that he’s doing ok 

Liz & OH 

xx

Thank you will have a read 

hope you are both well 

Liz & OH xx

Hello Liz (johnam) 

If he let's the Radiologists know about the bruising there's some special cream they can give him.

Best wishes - Brian.

Thank you Brian xx

Hi , just got a call from the Oncology Nurse who apologised and said he will be on Aberaterone until it stops working . So a bit of a mix up yesterday but it’s cool . 

He’s ok just really fatigued and went upstairs to change and fell asleep . He was up most of the night but he's coping with it .  His tummy looks like he’s been given a kicking , bruised but he said it doesn’t hurt . As Steve says 1/3 down . Just hope the remaining RT are the same

best wishes

Liz & OH. xx. 

Hi !

Am I missing something? From you profile I see a Gleason 3+4 correct? They also saw a T3B (seminal vesicle involvement) and then you were suppose to have scans to see if you had affected lymph nodes (N1). Did they find mets (M1) that makes it impossible to treat you with curative intent?

Are they radiating all cancer they detected; prostate, seminal vesicle, any lymph nodes or any mets?

Maybe I have missed out somewhere that you have distant mets and therefore they can’t treat you with curative intent and that explains life long hormone therapy and life long Abiraterone.

For me otherwise they seem to give you a very agressive treatment with radiation, hormone therapy and also Abiraterone which is a treatment plan for very high risk locally advanced patients with (possible) N1 and those are Done with curative intent and then you normally do 3 years of hormone therapy and 2 years of Abiraterone.

Well good luck with treatment. it’s robust and if everything goes as plans I think you will have a very long remission waiting for you 

Good morning Liz. At least you have got this clarified for now. What do the radiographers say about the bruising? Keep an eye on the bloods, in particular the platelets - if these are low then it can look like bruising but make sure the area is moisturised in between sessions. The countdown is on for the 14th January.

All is good here thanks but we are still trying to sort out hubby's hip pain which keeps flaring up -it is not associated with the cancer, just old age and old injuries. Cancer side of things appear to be under control but we will see in January when the next bloods and MRI are due.

Hi Ulfhbg 

the oncologist stated at the last meeting in October that my OH is not on a curative pathway as he has lymph node involvement and if they treated them it could cause more harm than good . It’s all ifs and buts. They are only targeting his prostrate and seminal vesicles . We were really upset and it was sign this , this & this . We chose to go ahead with the RT as we felt was going on and it was not just the oncologist who chose this treatment route it was a group of different oncologists, radiologists & medical professionals. 

so we see him 9th January and it’s going to be hard question time and we are not moving until he gives us all the facts , figures and anything else we deem to be important to us . 

thank you for the message 

Liz & OH 

xx

ps no other mets