Aberaterone

  • 6 replies
  • 109 subscribers
  • 169 views

2nd RT done 4 to go . The oncology nurse caught up with us today just to say Hi as we have spoken on the phone but never face to face .

we asked what next after RT and she said OH would be on Aberaterone for a total of two years and the nurses would see him not the Oncologist .   They would do three monthly checks then 6 monthly with PSA being checked . We said we thought the Aberaterone was to be taken until it no longer worked.  I showed her the letter that he sent and  it stated he would be on Aberaterone for two years if in the curative pathway but it didn’t say anything if not.  Anyone have any idea? 

Liz & OH 

xxx

  • Hello Liz and OH ( 

    The "2 years" could well be to see how he gets on with it and how his PSA reduces and stays down. You were on that fine line curative/not. It may well be a case if all is well after the 2 years lets withdraw treatment and keep a check on his PSA as the RT/Aberaterone may well have done the job.

    Just my personal thoughts and not being medically trained it makes me wonder. I do think it's a case of how he gets on with the treatment.

    I do hope he's Ok after the 2nd fraction of RT.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Good morning Liz & OH.

    I think the 2 years comes from a Stampede trial which showed considerable benefit when Abiraterone plus prednisolone was added for 2 years to men who were given local radiotherapy. Results were published in 2022.

    https://pubmed.ncbi.nlm.nih.gov/34953525/

    Hope your OH is ok after his second round of RT.

  • Morning Brian, thank you for the message . He’s still going his walk but having a nap . His skin looks bruised on his tummy . Other than that he’s doing ok 

    Liz & OH 

    xx

  • Thank you will have a read 

    hope you are both well 

    Liz & OH xx

  • Hello Liz ( 

    If he let's the Radiologists know about the bruising there's some special cream they can give him.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thank you Brian xx