What’s going on in my husbands body psa levels rising & lymph nodes in neck is swollen again

Hi Dude bear welcome to the forum though I'm sure it's a place you never wanted to  visit .I am so very sorry to hear about all that is happening for you both. I hope that you manage to get some answers and then at least you know what is going on. Sending some huge big hugs your way along with my very best wishes for you both. X

Hello Dudebear 

I am so sorry to read the problems your husband has encountered after his Radiotherapy, I am aware you are onto his team and hope they can give you some answers soon. 

To enable us to try and offer a little help are you able to give us some more details of his journey to date (TNM Staging, PSA results and Gleason Score). You can add these to his profile together with some details of his journey. To do this click on the chair on your home page, then "profile and then edit". Once you have written something don't forget to save it.

Once we have these details we will have a better idea of how to help.

Best wishes - Brian.

Hi sorry 

I will update my husbands diagnosis, but can you tell me what has happened to my other messages that had all that information in, nothing is easy for me at the min 

I thought they would stay in my account 

many thanks 

Hello Dudebear 

All your pervious messages are on different "threads". If you go to the top of the page, enter "Dudebear" into the search box, they all come up and you can still read them.

I look forward to reading your husbands diagnosis (although I am out most of today I am sure someone will be along to offer help).

If you are struggling with your emotions at the moment, please give our Support Line a call - it's free - on 0808 808 00 00 (8am to 8pm 7 days a week). There are some great folk there and they will be able to offer you some extra support.

Best wishes - Brian.

Thank you 

have a good day 

Hello again Dudebear . I have had a quick read through your previous posts and see that your husband has had both pelvic radiotherapy and spot radiotherapy to spinal mets along with ADT injections and tablets. The hormone therapy reduced the lymph node in the neck but it has come back again which indicates that they might need a bit of additional help with either more spot radiotherapy to the lymph node or some other form of treatment. I really do understand the anguish that having a rising PSA after initial radical treatment causes as my husband has had 3 recurrences so far in 4 and a half years. At the moment the PSA is still very low and by the sound of it your team are acting very quickly to try and find out what is happening. Your husband is still young which means that he should be able to cope with a more aggressive therapy and there are more in the toolbox, it is just a matter of trying them to see which one works best for your husband. How do we deal with this rollercoaster. We have a cry and then give ourselves a treat. Ultimately we have to trust our medical team and prove to them that we think life is worth living and that we still have plans.

Update 

oncology took 24 hrs b4 contacting us, advised to get blood test this morning & she would take the results & probs to the meeting with his oncology dr. They contacted us later in the afternoon & his psa level has gone down to 0.39 & they have arranged to bring the ct scan forward, we were told it was booked for 27th dec, he got a call & he’s got a ct scan now on sat. 
he was told that the meds he’s taking will effect his muscles just as much as the radiotherapy & if doesn’t get any better, then he will have to have physio , so still no golf for him 

Thanks for your support 

Good morning Dudebear . The first thing to say is that the PSA can bounce around following radiotherapy which usually indicates an inflammatory response. If it is rising continually then it is the rate of that rise which are important.

Yes the hormone therapy can result in loss of muscle mass and strength so physiotherapy can help but also your husband could try adding some resistance training into his routine. My husband uses resistance bands and I have been shown how to use a massage gun on him as he does suffer from lower back and hip pain from arthritis after breaking it which radiates down his legs and calves and the massage gun gives him almost instant relief. He is also treated by an osteopath who really does keep him walking properly but it is also reliant on my husband regularly doing the exercises she recommends. The problem is that if you have bone pain it can affect the gait which then makes the muscles tense and constrict the nerves which creates more pain. The exercise, manipulation and massage relax the muscles, release the nerves and reduce the pain.