What’s going on in my husbands body psa levels rising & lymph nodes in neck is swollen again

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After my husband finished his 1st round of radiotherapy 

once a week for six weeks, the following week, he started to get pain in his back & pelvis, he had mri & ct scan, again weeks waiting for results. His metastasis wasn’t playing game & he had one zap of radiotherapy to his pelvis & 4 to his lower back, the pain at its worse was awful, had very bad reaction to morphine. Psa level is still rising it’s 0.43, hrs waiting for ct scan & bone scan to make sure the cancers not gone anywhere else, he’s been very stressed & all we’ve done is a lot of crying. Today he’s told me his lymph node in his neck is swollen like it was last year, at the start of his journey. We’ve contacted oncology nurses & hopefully they will ring tomor, can’t wait weeks to find out what’s going on.

this is a horrible disease & to watch a healthy 62 years old, go down hill so quick is heartbreaking.

  • Hi Dude bear welcome to the forum though I'm sure it's a place you never wanted to  visit .I am so very sorry to hear about all that is happening for you both. I hope that you manage to get some answers and then at least you know what is going on. Sending some huge big hugs your way along with my very best wishes for you both. X

    gail

     
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  • Hello  

    I am so sorry to read the problems your husband has encountered after his Radiotherapy, I am aware you are onto his team and hope they can give you some answers soon. 

    To enable us to try and offer a little help are you able to give us some more details of his journey to date (TNM Staging, PSA results and Gleason Score). You can add these to his profile together with some details of his journey. To do this click on the chair on your home page, then "profile and then edit". Once you have written something don't forget to save it.

    Once we have these details we will have a better idea of how to help.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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  • Hi sorry 

    I will update my husbands diagnosis, but can you tell me what has happened to my other messages that had all that information in, nothing is easy for me at the min 

    I thought they would stay in my account 

    many thanks 

  • Hello  

    All your pervious messages are on different "threads". If you go to the top of the page, enter "Dudebear" into the search box, they all come up and you can still read them.

    I look forward to reading your husbands diagnosis (although I am out most of today I am sure someone will be along to offer help).

    If you are struggling with your emotions at the moment, please give our Support Line a call - it's free - on 0808 808 00 00 (8am to 8pm 7 days a week). There are some great folk there and they will be able to offer you some extra support.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thank you 

    have a good day 

  • Hello again  . I have had a quick read through your previous posts and see that your husband has had both pelvic radiotherapy and spot radiotherapy to spinal mets along with ADT injections and tablets. The hormone therapy reduced the lymph node in the neck but it has come back again which indicates that they might need a bit of additional help with either more spot radiotherapy to the lymph node or some other form of treatment. I really do understand the anguish that having a rising PSA after initial radical treatment causes as my husband has had 3 recurrences so far in 4 and a half years. At the moment the PSA is still very low and by the sound of it your team are acting very quickly to try and find out what is happening. Your husband is still young which means that he should be able to cope with a more aggressive therapy and there are more in the toolbox, it is just a matter of trying them to see which one works best for your husband. How do we deal with this rollercoaster. We have a cry and then give ourselves a treat. Ultimately we have to trust our medical team and prove to them that we think life is worth living and that we still have plans.