Frequency needing a pee

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Hi

Currently I am needing a pee every couple of hours day and night.

This has been going on now for two or three years and was the reason I went to the Dr in the end to find out I had PC.

I've had radiotherapy and continuing with HT I wouldn't say it has got any worse during or after my treatment but it is is starting to completely dominate my life at the moment.

I met with my Urologist a couple of months back and HD prescribe me solifenacin for over active bladders but that hasn't changed anything. 

I'm back with him next week after a bladder scan and flow test.

I have tried the bladder retraining programme for the last couple of months but that hasn't really helped do far

Has anyone else had a similar experience and ot questions/suggestions I can put to the urologist??

Thanks

  • Hi Brizzy1 welcome to the forum 

     I don't know the answer to your query but I know loads of lovely people in the Prostate Cancer thread that can. They will be along soon with some help and advice. 

    gail

     
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  • Hello  

    i have a feeling that you may well find this issue is a product of  Old Age, Prostate Cancer and Radiotherapy. 

    Here's a link to our advice on the subject-

    https://www.macmillan.org.uk/cancer-information-and-support/treatment/types-of-treatment/radiotherapy/pelvic-radiotherapy/overactive-bladder-after-pelvic-radiotherapy

    I had the other issue - under-active and cured by a TURP operation.

    Do let us know how you get on.

    Best wishes - Brian.

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  • I have always had an overactive bladder and was being treated for that for about 20 years or so before my PCa was diagnosed.  To be honest no treatments have really helped the overactive bladder aspect.  I drink decaf everything and do not drink after 6pm.  I was told to raise my legs whilst watching the TV at night as that "pools" the urine in the body apparently and so then I hopefully "let it all out" before settling for the night.  Currently up 3 to 5 times a night - I use a bottle so I don't have to go to the loo or cause too much disturbance to my wife - also have a little night light so I cans see that I don't miss the bottle ;).  One good thing about the bottle is that you can see how much urine you have passed last night about three quarters of a litre before 2am and didn't go to bed until about 10.30.  My urologist asked me to measure the urine passed and liquid taken in some years ago and I definitely passed more than I drank and possibly more than my wife and I drank Slight smile  Hope you can find something to help you.

  • Hi Brizzy1 

    my OH was up every hour or so overnight . He was prescribed Tamsulosin and he takes it around 7pm and it does help other than when he’s due to be seen at the hospital as this upsets his routine as he gets stressed . Although he would disagree. 
    Hope you get some support as nothing worse than a broken sleep .

    Best wishes 

    Liz & OH. Xx

  • Hi Brizzy1,

    I have been suffering with a leaky bladder following surgery on the neck of my bladder to treat blood in my urine, which was most probably caused by pelvic radiotherapy (a so-called "late effect"). I am currently using 3 or 4 Tena Level 3 pads every day, plus a Tena Level 2 pad overnight, and I get up to pee at least once every night as well.

    Here are my thoughts, apologies if you are already aware of all this:

    • Depending on where you live there may be an Incontinence Service, or help available through the local District Nurses, you may need a GP referral for these. They might be able to get you some pads on prescription. (Mine prescribed something unusable, unfortunately)
    • I assume you are aware of pelvic floor exercises, but if you can, you should speak to a specialist physio to make sure you are doing them correctly. I had to go to a physio privately about this but I think it helped me.
    • There is a surgical intervention called an Artificial Urinary Sphincter (AUS) which physically blocks the flow of urine. You have a switch in your scrotum that you press to release the flow. I haven't had this done, but I know someone who did. The disadvantages of the AUS are that it doesn't always work, and even when it does work at the beginning it becomes less effective over time (apparently 3 -4 yeas). And it is a surgery.

    Wishing you all the best