Wife of a P C patient

Hello again Caroline. Deep breaths - you will be OK. What you are experiencing is normal and many of us wives will attest to being in tears many times until you get a plan after the medical team have got all the results together. All these numbers and letters can be very confusing so each time you get a bit of information come back to us and we will try to explain it and put it into the bigger picture. The Gleason score is made up of 2 numbers so a 9 can be 4+5 or 5+4. The biopsy can also give you the Grade Group of cancer which is what I presume the 5 is. These numbers help the experts decide how aggressively the cancer should be treated. The thing to remember is that there are many different treatments available. I will send you a virtual hug and say to you that you are not bothering us, you are not alone, we understand what you are going through.

Hi Caroline1957 you are helping him by just being there.  It is a very difficult time waiting for test results and we have all been there.  I hope the results are good tomorrow and you can then relax a little. David

Hi Caroline 

I’m sending you a big virtual hug. I am also the wife of a pc patient and was in the same place just under a year  ago  I can recall the tears, fear etc  

it is so hard and feels that suddenly the life you knew has been blown apart. However once treatment is started things gradually seem to return to a more normal. So I am sure there is light at the end of the tunnel for you

Yes, we have had ups and downs but there have been some lovely  up’s such as days out, holidays etc

My very best wishes for tomorrow and do use this forum. The people on here are great in giving support and information 

xx

Hi Caroline, my dad has his phone call with PET scan results in hour like you I’m feeling helpless but also seeing the light at the end of the tunnel of finally knowing what is going on and the plan moving forward. Sending hugs xx

sending all the best

Hi

Please don't feel you are being a bother - you are not.

You are reaching out in desperation as where you are both right now is very scary.  My husband and I were there in April this year and we both thought life was over.

A few months down the line and he has been on treatment since then and his psa has gone from 82 to 0.1!

He has advanced stage PC with spread to bones and lymph nodes so to go down so far is just incredible and has given us much hope that he will be here for a few years yet.

The waiting for all the results to  come back is the worst and it is all consuming but I promise you that once you know everything and have a plan in place to treatment, you will begin to feel better.

Wishing you all the best for tomorrow. 

Amanda

X

Hello Caroline, my heart goes out to you! Where you are now is where I was exactly 2 years ago. I think I cried enough tears to fill a reservoir at that time. It didn’t matter where I was or what I was doing, those darned tears kept coming! Paradoxically, the kinder people were to me, the more I cried!

you do have one advantage over me! We were going through it all when mask wearing had been re- introduced in hospitals. I never did work out how to blow my nose while wearing the obligatory mask:)

 So, where are we now? Well, hopefully, all treatment finished! Just coming up to first post treatment PSA with real trepidation. But, we’ve managed some lovely holidays and family times. Life has been lived and enjoyed - albeit at a slightly slower pace. It won’t ever be quite the same cos nobody remains unchanged after a cancer diagnosis in the family. But, some of those changes have been positive! As a couple we are closer, as a family we are closer! 

just hang on in there . I hope the results are good and I send you a big hug!

Thank you so much I just don’t want tomorrow to come because then we will know and be told what treatment my beloved husband needs he’s my rock and I can’t even help him I sit up in bed just watching him wishing I could take it away but I can’t we have been together 36 years and the only time we have been apart is when I have needed surgery for a hysterectomy/ gaul bladder out and just recently I had knee replacement and in our married life 13 years we worked together so you see my soul mate hope you’re psa test is a good one xxx

 Caroline1957 I just repeat my earlier comment.  Your OH may be the strong one but he will be drawing that strength from you.  I have been in his position and my wife was and is my rock.  You often hear it quoted on here that PCa is a couples disease, never truer than at this stage.  You will get through this together.  Best wishes David

Thank you David virtual hugs xx(((((((hugs)))))