Hormone injection.

Good Morning Peter r 

A warm welcome to the Prostate Cancer forum, but at the same time I am so sorry to find you here.

The side effects of HT affect us all in different ways - some of mine took over 6 months to kick in, however 32 months down the HT road everything is under control. For me it was "mind over matter" - the side effects can be sorted as I am on a "curative pathway" so I live with them and to be honest, we don't all get every side effect but I think I have had most of them!!

I found the hot sweats and fatigue to be the hardest to fight - sage tablets cured the sweats (they don't work for everyone) and exercise cured the fatigue, which will increase during and after your RT so try and keep as fit as you can.

I hope the above helps - you can read my entire journey by clicking on my name or avatar.

Feel free to ask any questions, however trivial they may be, we are all happy to help.

Best wishes - Brian.

Hi Peter,

Welcome to the club nobody wants to be a part of. Saying that, this form is the only good thing about this PC.

We are 9 months into the journey and the side effects as you put it are bearable. The fatigue and hot flushes are the most common ones but in my husband case they have not worsen. The fatigue he tackles with an afternoon nap and the hot flushes, we changed the bedding to bamboo material which help somewhat. He is also very active, keeping up with sport like swimming and walking which is the best way to fight the PC bastard.

Lots of love

Dafna

I’m not medically trained, or a dietitian but creatinine worked very well for me. Before I started taking it, I had to go to bed for two hours every afternoon and felt asleep on my feet most of the time. I’m also doing a lot better on my home multi gym despite being on Horne therapy since early 2022.

Hi Roger That

It is a novel suggestion the creatinine. I just have been reading about it and how it does help athletes with body muscles wast. Have you run it by your oncology team? Our oncology team and the pharmacy insist to check any supplement to see if there is no clash with the HT. 

Lots of love

Dafna

Many thanks for the prompt reply. As I mentioned the side effects are bearable, with the hot flushes being perhaps the most annoying. The fatigue has turned me into a plodder rather than a walker, again bearable. I will certainly try the sage tablets. Best wishes.

Thanks Dafna, Fortunately my PC is ‘ pleasingly organ confined’ ( radiologists words ) I have a small multi gym at home which I use 3 or 4 times a week to help maintain my strength. Another poster has recommended sage tablets to help with the hot flushes and being retired I can nap at will. Hopefully the side effects have leveled off because I can deal with them at the moment. Best wishes. 

I also have a multi gym at home which I use several times a week. I’ve also altered my diet to cut out animal fats, fortunately my weight hasn’t altered up or down since starting my ADT. 
Having suffered with severe obstructive sleep apnea all of my life I’ve never had a problem with falling asleep during the day.

I’m hoping the side effects have leveled off and if things hopefully go according to plan my treatment should be finished in November and then I’ll be on pins waiting for PSA readings. To see if it was successful. Thanks for replying.  Best wishes.

Hi Dafna,

I must admit I haven’t told the oncologist but I will take your advice and do so. Thank you for bringing this to my attention.

Kind regards,

Paul

Hi

For me, the fatigue from HT was the worst part - aside from being told I had PC of course !

Just keep doing any ' plodding ' you can manage as it will help!

Regards 

Stuart

Many thanks for that Stuart. Fortunately I live very close to a nice  walk on the edge of the countryside, about one minute from my front door. It used to be a relaxing walk, giving me time to think, now …  too much time. Best wishes.