Hi everyone,
I posted a few weeks ago when we found out that my partner has metastatic prostate cancer spread to lymph nodes and bones. I received incredible responses and support. I am very thankful for that! We were shocked and a bit devastated by the news but we both got back up pretty quickly.
This is a bit of a rant; I hope it’s ok!
I am fed up with doctors and specialists who think it is right to put a time stamp on someone’s condition.
I have been a silent reader here for the past few weeks and I am horrified to read about people having been told that they have “this much left to live”.
The truth is that they absolutely DO NOT KNOW. Yes, there are stats, but remember that stats are based on a small sample of the population and that there are always new treatments coming up that would affect those stats.
In my mind, if you tell someone: You have 2 to 3 years left, there is a psychological effect by which this time frame will be stamped in their mind and inevitably, they will not make it over 3 years.
No. This must stop.
I would like to share with you how my OH and myself are approaching this terrifying diagnostic of Advanced Prostate Cancer.
Some might say we are fooling ourselves, but I like to think they are wrong.
First of all, we have agreed a treatment plan that we trust: Triplet therapy.
But that’s not all. We lived a relatively healthy life, but made further adjustments based on a lot of reading and vlog watching about advanced caner (not limited to prostate). I am happy to share the readings, etc. if anyone is interested.
I share everything that I find with my partner. We have a positive mind and when one of us is having a bad day (they do happen), we lift each other up, we do something we like, etc.
We have changed our diet to have less meat (we do love a good steak every now and then), more vegetables, eliminate sugar as much as possible and have more superfood that are believed to interfere with the cancer. MY OH was very active before but even more so now, cycling between 50 and 70km every two days.
We stay away from the negative as much as possible. We have a great oncologist who agreed that we should treat this as a chronic disease rather than a nasty illness that is going to kill him soon.
He said Advanced Prostate Cancer (at least here, in my OH case) is not TERMINAL (I used this word myself early on). This term also must stop being used. It is treatable and there are lots of options in case the cancer stops responding to one of the treatments.
We don’t have all the answers, far from. But keeping a positive mind and working together against this disease is the best we can do. Life is normal-ish, we have just been on a two weeks holiday, we go out to concerts, restaurants, etc.
We chose not to give this nasty disease so much importance in our lives, we refuse to give it the power to govern our lives. We are in charge.
Wishing everyone a great mid-week!
Hello Sprinter
No need to apologise - I make plenty of mistakes and get punished for them, my last one was telling someone they could read my journey by "licking on my avatar". I hope they are still not stuck to the screen! 
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I blame the augustiner helles
I am a real ale man myself and live in Oldham - we have a local brewery J W Lees who I have been keeping in profit for the last 50 years, although when the German branch of the family come over I insist on them bringing a crate of Erdinger.
Best wishes - Brian
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello P g tips
It's great that you have posted and welcome to the group. We are all in this together and however you are feeling there's always someone around.
It may be a medical discussion, you may want to vent (better here than at home) or you just want a chat - everyone of us here understands because we have that bond - prostate cancer.
Please do feel free to post and join in any conversations.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Thank you! This is such a positive read and so well written and totally on point! Only yesterday we found out that my partner has advanced mestastic PC, we are still pretty numb but feeling more positive hour by hour. I know this post was nearly a year ago, I hope you are both doing well
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That's the attitude 
The first oncologist when I asked told me 2½ years, I told him he was at least 3 years out. Then when on my next appointment I was seen by the lead consultant he said if the current medication gets me to 5 years he then has alternatives available. Like you I ain't planning on going anywhere soon other than on many holidays
