Back to square one 4months post opp

Hi  Jonny Five and welcome back, though so sorry it's under these circumstances, totally understandable your devastated,  things were looking so good and now it looks like a few cancer cells remain. If it is biochemical recurrence your prospects of having treatment to cure are very good, as I didn't have surgery I'm not able to offer advice on it, but I'm sure you will get some from the guys, best wishes

Eddie 

Hi Jonny five - I’m genuinely sad to see that you have had to return to the fold.  However, let’s get past the disappointment and look at the facts.  Your PSA is low and, although they didn’t remove all the cancer during surgery, you still have a good chance of cure via radiotherapy. I’m guessing that they will go for Decapeptyl hormone therapy (bicalutamide is preparing the way, as well as starving the cancer) and full pelvis (74Gy over 7 weeks) and blast the whole area, especially as you were initially T3b. Yes, the waiting is tough, but you’re on hormone therapy so the cancer has been stopped in its tracks.  The radiotherapy is tolerable- you’ll be fine.    AW

Hello Jonny five 

Sorry to read your post - I am sure your team can sort it - I know it will involve more appointments and treatment - but at least they are looking after you. 

Jonny five said:

feeling very low just now.The waiting just eats at you.upwards and onward

The last three words to me indicate you are on this with a positive attitude and you have kicked ass and moved on from the bad news - if however you want any extra help getting through this please let me know - we have things like this available:

https://www.macmillan.org.uk/bupa-counselling

There is also the support line on 0808 808 00 00 (8am to 8pm 7 days a week).

I hope the above helps, as I said if I can do anything else to help let me know. Keep us posted as to how you get on.

Best wishes - Brian.

Hi Jonny five , certainly a roller coaster through diagnosis and early treatment and I am very sorry the surgery didn’t get everything.  As others have said, RT will probably be used next and zap the remaining cells, but probably not for a few months.  I am T3bN1M0 and still steaming a mirror after 7 years.  Keep positive and I hope you get a curative prognosis. Best wishes, David

David2017 said:

still steaming a mirror

.  A great phrase..   AW

Thanks for the reply Eddie

Thanks for the reply will update as i go.

Thank you for your reply Brian I have pulled my socks up and I’m pressing on,I will pop back and post my progress

Still steaming a Mirror made some wee come out you can’t beat a good belly laugh thank you.

keep on keeping on

Hello Jonny five 

That's great news - and good to hear.

Remember though nobody should fight this cancer alone, The Community is here for you 24 hours a day and  I (Macmillan) have plenty of resourced to help you along the way. If you need anything at all just ask - if it's a bit personal my message box is always open.

Best Wishes- Brian.