Update…

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Hi everyone,

Firstly can I just thank everyone again than responded to my first post a few days ago regarding my dad’s diagnosis, you’ve all been incredibly reassuring.

Just a bit of an update… dad came home from hospital yesterday! We’re all slightly nervous, he’s come home with an enablement package with someone coming in morning & night to assist him getting use to doing his own personal care again & to get up & down stairs, these issues are more to do with the problems he’s had with low haemoglobin causing breathlessness since the 2 near catastrophic bleeds from his kidney that put him into hospital rather than the prostate cancer diagnosis he received whilst in hospital & we’ve been assured it’s nothing to do with the cancer diagnosis. His bloods should recover in due course & he’s also now getting iron support in the way of prescribed supplements. 

Onto his HR, we were first told he would be having the injections every 28 days possibly for the rest of his life, he had a triple dose the same day as his diagnosis & seems to have responded so well that another MDT meeting was held where his team have decided that 3 monthly HT Injections of either Decapeptyl or Prostatap are now the way to go with 21 days of Bicalutamide starting on 17th of this month. His bone mets are a little more widespread than I first understood with both femurs, pelvic & spine affected but have been reassured that if any of these become troublesome then a blast of radiotherapy is an option. 

At 87 & after the bleeds, kidney embolisation surgery, 1.5 stone weightloss, an incurable cancer diagnosis & 6 weeks in hospital dad is a bit of a shadow of his former self at the moment but we’ve been assured that he should get back to the same level of fitness he enjoyed prior to all of this happening so now it’s our job to recover his confidence & get him back living his life again. 

Once again thank you all for the support & although I’ve volunteered on the online community for the last 6-7 years the kindness shown by others diagnosed with this damn disease & those supporting loved ones is really overwhelming. 

Nicola 

  • HI Nicola, many thanks for your update, a lot of positives it's nice to hear, always nice to hear good news, best wishes to you both and i hope his recovery goes well. take care.

    Eddie xx

  • Good Morning Nicola ( 

    Many thank for your update - it's great to know how dad's got on and now he's home I am sure he will start to get back to his old self.

    Any cancer diagnosis is a challenge (as we all know) but when you throw in other complications and age - he's doing great and long may it continue.

    If you need any further help or information regarding Dad's Prostate Cancer - there's always someone here for you both. As I always say -we aren't a bad bunch on here!!

    Kind Regards - Brian.

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  • Thanks Eddie ( ), hope you’re doing well also. 

    Nicola 

  • Thanks again Brian ( ),

    Yes hopefully when we get his bloods up a bit we’ll see a big difference in his recovery. 

    Nicola 

  • Hi Nicola.

    Many thanks for the update on dad and it looks like he is back on the road to recovery. Having Prostap or Decapeptyl is going to be a bit easier than the 28 day injections but the administration as to who is prescribing and physically doing it can sometimes be a bit frustrating to start with until the routine is sorted out so check these details from the start. The hormone therapy does come with some side effects, the main one being fatigue so keep dad as active as possible as this really helps to ameliorate them. Has dad been put on bone strengthening drugs and also check whether Calcium and Vitamin D supplementation might be suitable for him. The hormone therapy can make him more prone to falls and possible bone fractures. To build up strength make sure he has plenty of protein in his diet but not too many eggs or high fat dairy products - my husband has CKD and has been told to limit them in order to protect the kidneys. Dad might find that he puts weight on round the middle and he may get hot flushes - think of the menopause. Basically any side effects, come back and then we can give tips on what has helped to deal with them.

    I hope that dad recovers quickly now that he is home, but a more worrying time for you, so take care.

  • I am doing ok Nicola and thank you for asking. more good news than bad which is nice, I have also looked after a parent, mum, with terminal cancer so have some idea what you are going through personally, though I'm sure you know, don't forget to look after yourself. best wishes.

    Eddie xx

  • Hope all goes well from now on.

    Take care of yourselves.

  • Hi  ,

    Thank you again for the advice… Regarding prescribing & administering the injections dad was sent home with a prescription for the Bicalutamide & the injections & dates to administer from his urology/oncology clinical specialist nurse whom has taken the lead in his treatment,  to hand over to his GP’s surgery, we’ve done that today, she’s registered him as housebound for now as his low haemoglobin is causing him to get breathless with even the slightest exertion which is difficult to see as he’s always been so fit, he’s also been referred through to the district nurse service in the area for them to visit at home for catheter care & with a view to them administering the first of his injections around the 24th of this month. We enquired prior to his discharge about calcium & Vitamin D3 with K2 supplements, his team said yes that’s a good idea & the over the counter ones will be fine for now & later down the line if required he can be given prescription strength supplements so we’re sourcing some good quality ones that don’t contain a boat load of fillers etc. Once again thank you for your continued support it really is appreciated.

    Nicola 

  • That’s great to hear Eddie, yes it’s not an easy journey is it? Sometimes I think it’s more difficult dealing with a loved ones diagnosis that it is our own at times.

    I’m at my parents until Sunday then I’m travelling back ‘up north’ to reset for a few days. We’ve lost my mums twin sister a couple of weeks ago also so amidst all this going on with dad we’re sorting out her estate & funeral etc., it never rains so they say!! 

    I really hope the good news keeps coming your way. 

    Nicola