So, I’ve run out of steam! I’ve fought and fought the local health bureaucracy for what seems like forever. I’ve done everything I can to support my husband. He’s had a lot of non prostate things going on as well. Today I was emailing a friend and realised that the only thing I can think or talk about is my husbands health problems. I realised too that his continued state of misery/ depression is just wearing me down. I hardly dare ask how he is doing because it’s always a negative response. I’m worn down and out with it all. This cancer and other illnesses has taken over our lives - hospital appointments, tests, negative mood, constant battles with bureaucracy - where am I in all of this?
sorry , rant over, just having a ‘feel sorry for me’ day
Hi WW.
I totally get it, how are you feeling today? I had a melt down a week ago. All family home and I'm running around after everyone. Partner spends way too much time saying things like "No, theres no point in doing that , I'll be dead soon," Grown up kids have regressed and arguing non stop. I'm an invisible machine doing everything. ( I'm only telling you this because it may cheer you up), Firstly, I have to say I don't tend to swear as a rule. Anyway, We all get in the car, because for some reason we have to have a family day out at a farm in the pouring rain. Me, partner that doesn't want to leave the house, regressed kids in their 20's and my sister who apparently has a bone to pick with me about a handbag I lost of hers 20 years ago and how's she's never got over it. The car feels way too small and everyone seems to be picking on me for everything thats wrong in their lives. I open the window and start breathing through the gap as i think I'm going to have a panic attack and then my sister says, "you've always been selfish, I loved that bag." Everyone chips in. We are only a mile from the house at this point and I say "Stop the car, I'm getting out!!...:Everyone starts saying no. I open the door at the traffic lights and attempt to exit while the car is still moving to shouts of no!!! and I say as I get out, (I can't actually believe I said this..) You are all a bunch of ………!!! Seriously I can't even give you a full hint as it's so bad. Result are everyone thinks I'm having some sort of breakdown as it's very out of character. But I felt so much better as I stomped home in the pouring rain . I'm now thinking Spa day, dear laws I need it. You should treat yourself too xx
Lx
Yes! SPA day is just want you need!!
Lots of hugs from Brighton
Dafna
Like you, I am normally the calm one who holds it all together and gets things done. When I do blow hubby know I mean business - even a determination to buy me another set of lacy bits today in a different colour. I think/ hope he appreciated them if the kisses and cuddles were anything to go by this morning.
Perhaps it gave your family a wake up call and that they show their appreciation. If not, just get on and do whatever makes you happy.
Big hugs.
Dear All, thank you for your very kind replies. Barry’s - have only just read your reply and it has made me smile! I hope the family issues are resolved?
the news is not good, I’m afraid. My husband seemed to perk up a bit yesterday and we went off to get me a new cozzie for our next, as yet unbooked, cruise. We were getting dinner last night when he suddenly stumbled and steadied himself by grabbing the worktop. He went to move from this ‘perch’ to the kitchen sink but nearly face planted the floor. He somehow got himself to the bathroom and I found him retching into the loo. I managed to get him into bed and into his night clothes but he looked dreadful. His systolic BP was 196, no SATS reading and a very slow pulse. He was very cold despite the central heating belting out and the fact that I had put the electric blanket on full blast ( hence the low sats ?) Anyway
, we agreed I should phone nhs 111 and they called an ambulance. The ambulance arrived within about 30 minutes. They did the usual checks and bundled him off to Leicester , telling me they thought he was having a stroke. They advised me to stay here and get some sleep….as if! Anyway, the CT scan seems to have ruled out a stroke and his blood tests are all normal. He is waiting for a bed to become free to be admitted. So, the duvet morning was obviously needed to get me prepared for this latest big hiccup. Life sure does happen, doesn’t it?
Oh WW. What a blow. I hope he stabilises soon and you get to the bottom of what happened so that he can come home soon. Thinking of you and a hug from both of us. Keep us updated on progress.
Oh WW, I am so very sorry to hear about this development. Hopefully they will get to the bottom of it and he will be back home with you soon.
Lots of hugs
Dafna
Hi WW - So sorry to read that. Keep strong and if we at Macmillan's can do anything for you let us know - we are all here for you.
Brian xx

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