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Hi, didn’t imagine I’d be posting here a few months ago…….I normally post on holiday/travel forums…. So hello. I had PSA x 2 before Christmas 2023. 8.2. 7.1    Then MRI , then biopsy. Diagnosed mid Jan 4+3. I’ve seen a consultant who 1st broke the news. Apparently I have 2 slow 2 moderate from biopsy. She kind of gave me the option to have removal or Active S. I also spoke to my Dr and in fact another Dr also . When pushed all 3 said they may well side with the A.S. In the mean time I had the choice to go and see the actual consultant / surgeon at the hospital 100 miles from where I live that do the op. Very nice chap, BUT he said he did not like a Gleason 4+3 in a 57 yr old and advised I have the op although that was just his kind advice. He said if it was a Gleason 6 , yes 100% do nothing apart from keeping an eye on it. I kind of feel I need to listen to him and go ahead with the op. I can just hear his voice as he as he did say “ I do not like a Gleason 7 in a 57 yr old . Anyway that’s my story so Thankyou..

  • My concerns regarding surgery was the fact that it was being offered as my only solution following my upgraded Gleason score and I wasn’t happy that the surgeon concerned wasn’t prepared to consider any other alternative. Being ignorant in these matters I have to rely on the skill of my oncologist and so far nothing happened to suggest that my treatment isn’t working. 

  • Hello  

    That's one important issue we battle against in the diagnostic stage - a Surgeon will go for his speciality and an Oncologist will go for their own.

    It's pleasing to note your treatment is working.

    Best wishes - Brian.

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  • I think he means HT and EBRT.  By definition, AS and EBRT don’t go together as AS is no treatment and EBRT is treatment.  Besides, with a Gleason 9 there should be no way he’s not on some systemic therapy such as HT for at least a couple of years.

    AW

  • Probably my error, told you I was ignorant about these matters, but to clarify I’m taking Abiraterone daily and Zoladex injections every 3 months which I will be taking for a minimum of 2 years and as indicated just completed 20 sessions of radiotherapy 

  • Good Afternoon Boys  &  

    I can only go off the information provided in a post - my Ghast was Flabbered when I read Gleason 9 and AS - I am now lying down in a darkened room being tended by my nurse!! Rofl.

    No in all honesty thanks for sorting all that out - I am now aware of the true situation. Cheers AW - that's set my mind right.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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