Starting to feel anxious

I just asked Steve what food he would like to celebrate with and he said 10 fried eggs. He hasn't been able to have them whilst on chemo . 

That's a coincidence. The first thing my husband wanted at the end of his chemotherapy was poached eggs on toast.

Have a lovely time in Bournemouth but don't eat too many sticks of rock, ice cream or nutty bars or you won't get into your cruise dresses.

Thank you everyone for your replies 

All the best for Friday Shar with the last chemo cycle.

We have just had our review with the Greek God after completing 6 cycles of docetaxel so it was crunch time after 40 months on this Journey. Bloods are the best they have ever been and kidney function improved to a level where he no longer needs support with epoetin alpha - 1 less injection every 15 days after 3 years on them. Lymph nodes in upper abdomen are still shrinking so keep off the Enzalutamide - 4 less tablets a day. Mass behind pancreas and in prostate area remain fibrous and stable. SBRT not going to be an option in the pancreatic area as it would cause too much collateral damage but lymph nodes may be suitable for it at a later date. Leuprorelin implants every 12 weeks to continue so it was off round the corner to the urologists for the next jab in the tum - he says he doesn't feel a thing. Xgeva injection for bones to continue every 2 months as a precaution, along with Calcium and Vitamin D daily. We are continuing to monitor bloods and having MRI's every 3 months. The obvious question was what next? Give the body a rest for as long as possible. If lymph nodes start increasing in size they will probably be zapped. If there is any evidence of mets or if prostate and mass behind the pancreas start to grow then more chemo. If needed within 9 months then it will be with Cabazitaxel, if after 9 months then docetaxel again - not a nice prospect but at least they have now set up an oncology unit only an hours drive away rather than having the 4 hr drive each way we had for the last chemo course. Still more options further down the line so the rollercoaster continues. Not only is my husband a non secreting PSA but also very few cases have been recorded where there is a secondary PCa mass associated with the pancreas - trust him to be awkward - so they have no idea how things will progress. All they will say is that he is doing exceedingly well. I think this is one for the scientific papers.

Wow - That's amazing - it's another well done to him and a well done to you for getting him this far.

Let's hope the improvements continue and his mobility and general health continue to improve.

Well done you two 

Wow from me as well I feel so happy for you. Great to hear bloods and kidney function have improved. Thank you for your good wishes for Friday. Together we can beat this. You have been so supportive of your husband and me . Good that you won't have so far to travel. X

Alwayshope - that is fantastic news.  Quite an amazing and inspirational rollercoaster but let’s hope you have a smooth journey from now on.

Shar - Good luck with your last chemo on Friday.

David

Thanks David. We are under no illusions, just extremely grateful that we still have a good quality of life after 40 months considering that in the beginning we were told we may only have 6 months together. We have no benchmarks to go by because of the rarity of the type of PCa my husband has - only 2 reported cases in the scientific literature - and it is thanks to the medical team pulling out all the stops from the start as well as bloody minded determination to beat this for as long as possible that has got us this far.

I am sure positivity is a factor.  I can’t believe I have been on my journey over 6 years and most of that time has been reasonable quality.  PC seems at long last to be getting the attention it deserves. David