Dealing with my husband’s advanced prostate cancer and not being able to tell anyone.

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Hello, 

my husband was diagnosed with advanced prostate cancer just over a year ago. He has struggled with the mental side of things and he doesn’t want to be defined by it. He decided from day 1 that he didn’t want to tell anyone about it except the very immediate family. He really only wants to talk to me about how he’s feeling and wants to put a positive spin on things for the immediate family. I completely understand his view on this and I want to support him, but I’m finding it increasingly difficult not being able to talk to anyone else. It’s getting harder as time goes on. Does anyone have any tips or advice on how to deal with this? It would be much appreciated. 

  • Hi Jane - Just a thought, we don't know at what stage your husband's diagnosis is - it's up to you but if you  stick some details on here, staging, Gleason Score etc someone I am sure will also be able to give further advice and perhaps what to say to him and how to move on  going forward.

    As I said earlier in my original  post we are a community and we know - men and partners - how this cancer can affect us all - and we are all different and we respect that.

    Kind Regards - Brian.

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  • If there is a Maggies cancer Centre or other local cancer self help support group or charity near you you can always go there and talk to someone.  My wife loves going to Maggie's as well as being able to talk to someone they can give professional advice on all aspects from benefits to relaxation classes.  My wife used to just love to go and help in the garden - with the added bonus of bringing home fresh organically grown produce.  You need to talk to someone who can just listen to you so you may also find that there is someone at the hospital you can talk to or an organisation available there or who they can refer you to who can help you.    For maybe more specialised help and advice there is always Macmillan and Prostate Cancer UK specialist nurses available on freephone 0800 074 8383 the phone lines are open from 9am to 6pm Mon, Tues, Thur, Fri and on Wednesdays from 10am until 8pm

    All the best.

  • There is a national support group for partners only (and not the patient). Partners need support too, and it's different from that required by the patients. It meets quarterly on Zoom (and sometimes adds in extra meetings too).
    National Prostate Cancer Partners Support Group

  • Hello Jane. I am so sorry to hear about your hubby diagnosis and I hope I can help. I am in the same position as yourself. We only found out a few weeks ago about my hubby diagnosis. His PSA was 2023 and he has been to hospital the next day for hormone treatment and biopsies. He had a scan a week ago and we are getting his results on Tuesday. He won’t speak to his family or let me tell our boys or his family. I’ve updated both our employers. I too am finding it hard. I have good friends and I cannot discuss it’s been very difficult as I am an outgoing person and I know they would support me. I have started to use an app called ON THIS DAY where I jot down my feelings which with that and the great support  on here it has really helped. Please feel free to contact me personally if you wish to discuss I would be more than happy to have a confidant. Take care Carol x 

  • Hi Jane.  It's all very personal decisions but difficult for you of you can't share and want to.

    As others have said  you are no longer alone now. You have this forum and a community of people who will be there to support. All anonymous and we are all experienced in this 'journey.

    One other thought. If you have a macmillan centre near you they offer all kinds of support to both the person with cancer and their partner/family in equal measure. Could be discreet and helpful.

    Wishing you all the best.

    Andy

  • Thanks for your reply Carol, I really appreciate it and likewise, contact me if you ever need to. understand what you’re going through and I know how hard it is not to be able to talk to anyone about it. I have been really touched by everyone’s messages and I am grateful for this online community. 
    Take care

  • Thanks so much for your advice Andy.

  • Thanks so much for the info Andy

  • Thanks so much for all the info Freefaller. Everyone has been so helpful. I really appreciate it

  • Thanks so much Brian