This is for anyone who can't keep on the topic. It's hard not to stray, but if we have 'no specific topic ' we can't go off topic.
It is good just to be able to wander and talk about other things.
I could have named it 'Waffle'. Then I couldn't go off topic.
I do, but no edit button.
He is doing okay but has been very depressed lately which is hard to cope with.
Gx
Richard's depression is a difficult one for you to deal with on top of everything else. I do sympathise as my husband's depression and PTSD has been made worse by the hormone therapy and is more difficult to control.
My 'More' gives me the option to EDIT, DELETE or CANCEL - what options do you have?
Hi Alwashope
I can see what Richard is depressed about, looking to the future can be overwhelming knowing what could happen.
Any man, who ever it is has always the thought of what the last treatment might be.
As I’ve mentioned I’m a very easy going person, I rely on consultants and Onocologists to have my best interests when. I see them.
The last time I was at urology, ( a few months ago ) I was told my last option is Radium 223, maybe a few fractions of Radiotherapy.
Reading u on Radium 223, your life is prolonged when taken with a cancer drug, eg enzalutamide or Arberaterone, plus doxcetaxel although I cannot take this, plus I’ve been on Enzalutamide, so wether I qualify for this I don’t know.
Of course we all get down, each person is different, especially how they react to news good or bad.
I hope he pulls through his spell of depression, as it affects all around him.
Stay Safe
Joe
Hello Joe and thanks for the kind words. Richard is Gina's (Sidsum) husband. My husband is currently doing well as he has responded to the SBRT he had in April to distant mets. He is working through the options as well and has been told his next one will probably be Lutetium 177. He has also had a recurrence after Enzalutamide but there are trials which indicate that it might be possible to have it again after chemotherapy has failed and yes, there is also evidence that having an ARPI with the radioligand therapies can increase the time to recurrence. Whilst my husband has a good quality of life he is open to further therapies but will not put quantity over quality and I will back him whatever his decision is.
And how are you doing at the moment?
Hi Alwayshope
fatigue is a devil for me, always tired. I was due to have an operation on both knees, but because I had chemo the operation was put off, I have at least another thirteen weeks to wait.
a number of months ago I had a slip right at the bottom of the stairs. I jarred my back severly, after a scan, I had a few cracked ribs and my back is still very painful.
Apart from that I was in hospital for ten days, I had a build up of fluid, when drained, they took 26 pints out of me. So apart from pins and needles in my hands and feet plus my hands having the shes, I just wait to see my Onocologist 1st November, lots and f fun
Stay Safe
Joe
Not an Ideal way to lose a couple of stone Joe. Hubby doesn't fall so often since coming off Enzalutamide but when he does he is usually carrying something which does him damage - the latest was the cast iron umbrella base and he managed to bruise his ribs which came up as a new finding on the CT scan so something else to explain to the oncologist on Friday.
Fatigue is a constant battle so we all have to work round it, but his afternoon nap sets him up for the evening.
I hope you manage to get your knee operation as that should help with mobility.
He is definitely worse since the stroke and his memory is all over the place. I told him I was taking the dog to the vet yesterday and while I was in the town, I popped into the supermarket and the post office as well. Only gone an hour and he was on the phone saying where the hell was I, I had been gone for ages!! When I got home, he said you didn't tell me where you were going and yet, as I was going out of the door, with the dog on a lead, we talked about him having his injections!!
I don't get the edit, just some other options but I do on my pc.
G
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