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I’m sure everyone here , including me, is wishing you well for Tuesday, Gina. Let us know how you get on? X

Hello Gina (Sidsmum) 

Don't worry about using the thread to vent and chat - that's what it's here for!!

We all have that common bond - Prostate Cancer - but life goes on too and it's very important that it does. If we can talk, chat. laugh and frankly get on with life it makes that common bond PCa just that little bit less important.

I wish you well looking after Richard - it can't be easy and I hope you are OK Tuesday. Remember to look after yourself and treat yourself after the appointment.

Kind regards - Brian xx

I agree with you there Brian.

I saw something the other day that said - "If you do not make time for your wellness you will be forced to  make time for your illness".

How very true that is.

Enjoy your day 

Peter

 Worriedwife , with Gina having a great friend like you really helps.  I'm sure Gina will agree with me.

I never knew there were so many "worriedwives" , you are the original though!

 Sidsmum Fingers crossed for Tuesday!

Gina, I don't know if I have mentioned before about a guy in my Prostate Cancer Support Group at Maggie's.

He went totally incontinent 3 years after Prostate surgery.  He got an artificial sphyncter fitted.  He has a button in his scrotum to press when he wants to pee.

Would Richard be able to do this?

I don't know if R's age or dementia will go against him.

You could always enquire about it.

Awww, Steve, that’s kind of you! Thank you!

re the artificial sphincter - I know of someone who has had it fitted. I think it took 3 ops before it worked successfully. As you say, though, Richard’s dementia and his ability to understand and give consent and manage the sphincter might make for difficulties. 

I know there is a clinical reticence for the long term use of urinary catheters and, again, R might not be able to tolerate one, but, is there any milage in discussing this as a possibility? The hard labour is doing all this washing and the cost of electricity and water must be tough?

Sorry to hear about your situation Worriedwife

With regards to the extra expense with washing etc I wondered if you can claim attendance or carers allowance although R would have to apply or agree to it or so I believe. It won't help with the hard labour but would help with the extra costs. With your Water board they may offer some monetary relief due to excess use of water on medical grounds.

You must have tremendous patience take care.

Hello Ann 33

it is Sidsmum ((Gina) who is experiencing a massive workload with her husband’s health issues. Gina and I occasionally meet up for a coffee as we live fairly close to each other.

im sure that Gina will be grateful for your words that you have mistakenly addressed to me and for which I , too, thank you :)

Hi Ann, we do get attendance allowance and now going to be at the higher rate. However, even with one morning call, this does not cover the cost of a carer. Still, every little helps. Not sure of help with Water Board, I will look into that..

As WW said, I am grateful for your response. x

Hi Steve, why do I find that so funny!! A button up his bottom or another sphyncter as apparently we have four.

Never heard of this but another thing to look into though. x

So sorry for the mix up. Not great at this replying lark once wrote a lengthy reply then suddenly lost the whole message. Arhhh!

It's nice that you support one another,even though we would rather not be in this worried wife club.X