No Specific Topic

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This is for anyone who can't keep on the topic.  It's hard not to stray, but if we have 'no specific topic ' we can't go off topic.

It is good just to be able to wander and talk about other things.

I could have named it 'Waffle'.  Then I couldn't go off topic.

  •   I'm so sorry to hear this news!  How are you coping? 

    I see you say life is developing into a new set of norms.

    I know things won't be the same without Peter.  I keep meaning to start a 'bucket list', I hope you get to Egypt to start your 'bucket list'.

    I'm speechless, I don't know what to say!    Peter is in my thoughts!

    Take care of yourself!

    Steve (SteveCam)

  • Thanks Brian. Peter's disabilities stemmed from his time in the services so today is very poignant for me as we always watched the Festival of Remembrance programme the evening before the Cenotaph parade today. 

    The friends on here got us through the rollercoaster that is prostate cancer so thank you to all of you and KEEP FIGHTING.

  • Thank you Steve. Egypt is already booked for 3 nights in Cairo and then 7 night on a Nile cruise to visit all the sites. I am now trying to increase my fitness level and have upped my daily steps to 15000 so that I can cope easily with all the sightseeing. I have found a company specialising in solo holidays for the over 50's providing all inclusive itineraries - this will make a change for me as I had to deal with everything when we went away previously ensuring things were in place for a disabled person.

  • Hello AH

    its lovely to hear from you. I can fully understand how busy you have been with all the formalities but it’s really good to hear that you now have something positive to look forward to with your trip to Egypt. I think I might be speaking for everyone here when I say that it would be lovely if you could keep in touch with us. You have helped so many of us through some very dark days and it’s our turn to thank you for all that you did for us and to make sure we are here for you if you need us.

    i do think that your care and love for Peter has shone through all of your posts and I’m sure he lived longer and happier because you were at his side.

    sending you a big hug and love x

  • Dear  

    you are an inspiration to all on this forum . It’s lovely to see you back on and I for one am thankful for the advice & encouragement you gave us both in our early days of despairing diagnosis.  we have now realised we work round the blood tests etc and are back enjoying life 

    We are both sending you huge Scottish hugs  and best wishes . It’s early days so take your time to do things you want to do .

    Liz & OH xxx 

  • Hello AH,

    My heart stopped a bit when I read your post. I did not know about Peter until now. I am so very sorry, it feels like loosing a close family member. Without being too sentimental I can say without doubt that you were one of the most important people in my life in the last few years. Your positivity, your knowledge, generosity and non-judgemental attitude. All of it keep me together in the first year of diagnosis. I hope you will stay in touch and I know you will enjoy life now, because that's what Peter will want. 

    Lots of love from us in Brighton and have lots of fun in Egypt. 

    Dafna

  • Liz, Alwayshope is very much an inspiration to everyone here.

    Hope you're both well.

    Steve (SteveCam)

  • Hey  

    thank you for asking . OH gets his Prostap on Monday and has his PSA checked 1st December . So the stress levels are starting to show . There is no easy answer to how you men cope from blood tests  to blood test . 

    The sleep thing is starting to get him down but we went to our local Maggie Centre on Friday and you can actually see him calm down when chatting to the councillor . She has suggested speaking to our GP again . So will ask for an appointment tomorrow when we’re at the nurse. 

    hope you and your family are doing ok  And most important totally agree with you sentiments about our dear friend 

    Hugs 

    Liz & OH xx

  • Hi AH,

    I was so shocked when this thread popped up and I found out your sad news. I felt close to tears, even though I didn't know Peter. You have both been in our family for a long time and as others have said, I have loved your positivity and determination to live your lives as best you can in the circumstances. I am also grateful that you have returned to the fold and long may you do so, even just to give comfort to so many new members who's numbers seem to increase daily.

    Richard is still in hospital, although due to come out on Friday. We have arranged a hospital bed for him and I am currently trying to find the best configuration for it to fit into his office. It is the best room for him as he will have most of his familiar things and his tv and pc. However, I bought him a riser recliner chair when he was struggling with getting out of his office chair. This is now causing problems to fit that in as well so he can have his own little, warm man cave which is where he normally used to spend his day. 

    He was fairing quite well regarding rehab and his mobility, but unfortunately he seems to be going backwards again and is struggling to stand. I am getting very concerned as to how I am going to cope when he is home. I have asked, and fingers crossed I get, a package of care for the first few weeks he is home. Whilst we have our carer come in every morning, I am not sure I can manage him for the rest of the day. 

    As for Egypt, been there done that and it was a wonderful trip. We did it to celebrate our 25th wedding anniversary, so that was just over 25 years ago. However, don't think that the pyramids have changed a lot since then Sweat smile. We had a couple of days in Cairo and then a week on the nile. Just a word of warning. If you decide to go to the Museum in Cairo, which is a must, be aware of men telling you it is closed for lunch. Unfortunately we fell for that and were taken to so called 'Government' jewellery and carpet shops, before we smelled a rat and insisted he take us back to the Museum where, unsurprisingly, it was open all day!!

    Again, I am so sorry to hear of your husband's passing, but I wish you well in your new 'normal' life and so admire your positive outlook.

    Gina xx

  • Liz, I attend the 'Prostate Cancer' support group at my local Maggie's in Newcastle.  That helps everyone a lot.  We are all in the same boat, everyone is at different stages in their journey.  I learn a lot.  Then it doesn't help when I forget lots of things all the time!  Especially when I am stressed!

    I'm going through a good spell at the moment.  61 years old and just met up with my half brother, I never knew existed, for the first time last week!!

    I've been 'buzzing' ever since.  I'm not the youngest anymore!!  Woo-Hoo!!!  We are going to try and keep in touch.  I don't keep in touch with my siblings, 3 brothers and 1 sister.  I won't go into it!

    My sister has known about Bruce my half brother for over a year and a half.  Not a letter to me to inform me.  She didn't even tell Bruce about me properly!  Cow!!!

    Take care both of you!

    Steve (SteveCam)