Not eating

Well he seems a lot brighter.  He has just had another shower, with my help and guidance and this always makes you feel better, well does me anyway. He is covered in bruises from all the falls he has had and a wonder I haven't been referred to Social Services!! 

I asked if he wanted something to eat at lunchtime and he said have we any baked beans!! At least he is starting to think about food I have said that he can have that if we can finally get him downstairs for his dinner tonight. However, I think we may have to be careful as not sure baked beans are ideal with explosive diarrhea.  Okay if you don't mind redecorating the walls!! :). However, after day four of Budesonide, there does seem to be some improvement on that front (or back).  He will have been in bed now for two weeks and needs to start moving or his muscles will waste away.  We have an OT lady coming to see what further equipment we can have to help his mobility and bathing.  He has just weighed himself and from over 12st,  8 months ago, he is only 9st 11lb. 

Did you have any side effects on the seroid tabs?  He does still get confused and still has dizziness although not sure that is from the cancer and hormone treatment.  

Nice to chat,

Best regards

Gina

Just seen your post re Covid.  I shielded Richard for the first year and mostly did online shopping.  I am lucky that I have a dog and walk him everyday.  During lockdown I continued to walk and have a few friends who I meet and it kept me sane I think. I don't wear a mask now.  Funnily enough, the people who were most wary and scared of getting covid and took even more precautions have nearly all had it.  My best friend washed all her online delivery when it came in and when she did go out, she would come back and put her clothes in the washing machine.  She hasn't had it thankfully, but unfortunately did get skin cancer and went through a really rough time with a large portion of her nose and forehead scarred through the operation to remove a relatively small lump. Those friends who have had the Omicron variant said it was more like flu and have got through it okay. Whilst I was writing this, I just heard him going downstairs on his stairlift, so just hope I get him back upstairs!!

Best regard

Gina

Gina,

You have a great sense of humour.  My sense of humour is what kept me going.

I don't think I had any side effects of the Budesonide.  I was just happy it worked.

I was, and still am getting Hot Flushes, mostly in bed.  Sometimes I can sleep, sometimes not.  Just one of those things.  My emotions were all over the place, my waistline, it just expanded, not putting weight on, just my waistline.  Strange!

Also being confused and unsteady on my feet.  I sound like a right one.

It did get better, gradually.

Steve, 

I always try and see the funny side of life, and yes it does keep me going too. You don't say how old you are. Richard is 77 and I am 71. I am not blowing my own trumpet but people never believe my age as I have a youthful attitude to things, try and keep relatively fit and active and (like my mum, even at 92 who did her makeup and hair every morning) try and make the most of my appearance. When I take Richard to his hospital appointments, they invariably ask if I am his daughter!!! Flattery for me, but not so for him.

I have no sympathy with your hot flushes as nearly all of us  women go through that with the menopause and how much sympathy did you lot show then I wonder : -)

Keep cheerful, keep in touch.

Gina

Gina, I am just a young pup of 58.

I don't know how women can put up with the Hot Flushes, it was a novelty at first.  Now it's a pain.  And that's after just 11 months of them.

Hi Sidsmum, I have some friends in the rowing club who recently asked me how I dealt with the hot flushes and, yes, they are all ladies in their late 40s or early 50s! It's certainly a bit strange for a 74yo man to be asked those questions, but they have accepted my advice and all seem to have benefitted from it.

Seamus,,

Is that the Evening Primrose and Sage leaves capsules you mention in your profile?

I basically grin and bear it, not so much of the grin at times.

It's a necessary evil.

How are things with you?

I've kept up with my diaries since I was diagnosed, now every day I look back to this time last year to see how I was feeling.  Some of it puts a shiver down my spine.

This time last year I was at an all-time low.

Now, I am like a different person, my whole outlook on life has changed.  I can relate to new men just diagnosed and if any of my limited 12 months of experiences can help them cope...

If it hadn't been for the Cancer, I would probably still be keeping things in and not saying when anything was wrong with me.

It's a hard road but I am up for the task now! 

Hi Seamus, luckily being 71 I am over the hot flushes although I did have a 9 month course of HRT which made me feel so much better.

Cheers

Gina

Hi Steve,

I've got PC and am on HT. I've handled the hot flushes with the help of a Dyson fan that has a remote-it's an absolute blessing whether I'm in bed or sitting at my desk working, it cools a hot flush down immediately. It's not cheap-£339 (John Lewis)  but worth every penny for it's remote accuracy and control. There might be other versions around. Hope this doesn't sound like an Ad, but it's helped me deal with this annoying aspect that isn't going to go away!

All the best,

Denis

Denis,

Thanks for that.  My Hot Flushes are 99% of the time in bed.  I do the usual, pull the duvet down until I cool off, then repeat.

Someone had an idea of filling up a Hot Water Bottle with Cold Water, and placing inside an old pillow case.  I'm meaning to try that.

The hardest thing now is getting back to sleep after getting up for the toilet!