Not eating

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Not sure if I am duplicating this on another part of the site, but  my husband (77) was diagnosed with advanced prostate cancer about a year ago.  He has multiple bone mets throughout the skeleton and whilst initially on Firmagon (hormone therapy), he has changed to Prostap as he had too much pain from the first. 

He has bladder incontinence which is manageable by wearing pads but has been having often uncontrollable diarrhea every day for nearly four months.  He has had an endoscopy and a colonoscopy so far and oncology say nothing to do with the cancer.  He recently had an MRI to rule out spinal compression and a contrast ct scan.  Nothing sinister found that they didn't already know.

However, my biggest worry is that he can no longer can eat.  I have tried everything, obviously including his favourite foods.  He can manage sweet things like fruit, yoghurt and soft deserts but he just cannot mange more than a couple of mouthfuls of any savoury food and is having Energy drinks supplied by the doctor.

My questions are, do other sufferers have bad diarrhea and is total lack of appetite and inability to eat normal.  He is going downhill so fast and also getting dehydrated too. I am at my wits end trying to help him.

  • Hi you two, not really sure why I would have porridge, it's crumpet and honey for me!!

    Anyway another 3 and a half hours of my life I won't get back. Had to go to the Ambulatory Care Unit, which was a bit of a contradiction as R was so weak and needed a wheelchair when we got inside. His heart rate was around 40 at best, not good. Gave the nurse a bit of a turn and she had to do two ecg's.

    During all the waiting, I was most surprised when a nurse brought the tea trolley round and dished out hot drinks and sandwiches and biscuits. At least that passed the time.  Also, the entertainment from the poor older chap (clearly special needs) who was waiting for someone to take him home. He had a very loud voice and shouted at the poor reception lady.  Will you ring my brother to tell him to collect me he shouted.  Yes of course, what is his number? I don't know!! Who is your next of kin? My brother!! A good section of the waiting patients were gripping their stomachs, including us, at that point.  He kept getting up and asking and in the end, they got him a taxi, and he didn't have to pay.  Hmmm, must remember that one next time I go in with R in the ambulance and am stranded at the hospital!!

    When we finally got to see the doc, it appears it was all down to meds being too high. He has also been pulled off warfarin and put on one of the meds which do the same job, but don't need the weekly or fortnightly trip to the town to get his clotting rate measured, hooray. Been asking for this for years. His meds have changed so many times recently, there is no way he would ever remember to take the right doses. Just as well that I am, like Tracey, well versed in medical terms and meds and can chat in their language very fluently!! It is hard enough for R to know which blooming day it is let alone which section of the dosset box. 

    He has to have more blood tests Monday, but the kind doc said we can get them done at our surgery instead of yet another trip to Peterborough, phew!!

    Have a great weekend

    Gina

  • Gina, the porridge reference was for your stint with the handcuffed prisoner.  Get it now!

    I know why the hot drinks and sandwiches came out.  They must do it for all the frequent fliers, celebrities.

    You know the Warfarin, is there any chance of getting it changed to Apixiban?  That's what I am on.  No weekly or fortnightly trips to get the clotting checked.  They tried to put me on Warfarin but Tracey put her foot down.  Apparently it reacts more with my current concoction of medication.

    I'm on the Apixiban for the rest of my life and I would hate to have to go every week or so to get the clotting checked.

    All I need to do is cut myself shaving, there's not a clot in my body (apart from the Clumsy clot!).

    Watch out for the BBC, I think they might be starting a new reality show "A&E with Gina and Richard"

    Maybe ITV "I'm in A&E Get me out of here".

    You would have thought someone would have put 2 and 2 together and checked all of the medication Richard was taking.  It shouldn't be down to you.

    Just getting off my high horse , making sure I don't fall.

    Steve (SteveCam)

  • Perhaps you should only get on smaller horses or a cow less distance to fall.

  • ...as long as I don't land on my head.

    Steve (SteveCam)

  • Of course we don't want you damaging the ground 

  • Oh derr, porridge, what a plonker, of course.

    Definitely should have a loyalty card!

    He is now on a similar one to Apixaban, longer name beginning with R which I have yet to get my head round remembering. He has been asking them for years why they have not put him on that, and each time they say not suitable. I should have done a 'Tracey' and put my foot down. The petrol he would save not having to go back and forth for INR checks and all those jabs I had to give him recently too, would have been unnecessary. I always thought it was because warfarin was cheaper but is actually the opposite. 

    Love the ideas for the new programmes Steve as long as I don't have to eat kangaroo wilies!!

    Richard had a bad night after he exploded in the shower room several times.  I went in to wake him up and saw what I can only describe as a redecorated bathroom. It used to be cream, with a cream floor but not this morning!!!!! OMG, that took some shifting. Just as well my friend, who is a driver for on call doctors, gave me aprons, gloves and wipes from work. So with the equivalent of a hazmat suit I had my work cut out cleaning the room as best I could.

    He is so poorly again and cannot really swallow food despite having had all the tests and no physical reason why. So, as I am a qualified vet/doctor/nurse, I have put him back on the higher dose of steroids to start the course again. 3mg was just not doing it and I will hopefully speak to his doc tomorrow. I cannot see it will do more harm than he is already suffering. He is even out of his favourite tipple but too ill to go and get any, plus all the bottles in the kitchen are clearly marked.

    I would suggest Steve you sticking to Shetland Ponies in future, as Ulls said, we don't want any more damage  to the ground, there are enough potholes in the roads!!

    Happy Sunday

    Gina

  • Gina, Riveroxiban is the name you can't think of.  I tried them but couldn't take to them.  Quite happy with the Apixiban.

    Sorry to hear about the mess Richard has got you into.  Good job he wasn't eating peanuts Peanuts, it must be horrible for Richard, never mind for you having to clean it all up.

    Forgot about you being a doctor as well.

    I honestly don't know how you cope.  You deserve a medal Medalor 5.

    I really hope that things start going right for a change.

    Steve (SteveCam)

  • Yup that is the one. Why couldn't you take it? Did you have side effects?

    Spent all morning just trying to organise a blood test. Oh, no appointments lady at surgery said. Can give you one on 16th November!!!!!!!!!!! Well that is no bloomin good, he has to have one today!! Anyway, apart from me having a stab at it myself, I finally got an agreement for the nurse to come here but don't know when. Managed to also get a call from the doctor too in the end who is hopefully going to authorise things. I was on the phone to several people for two hours before I could take the dog out for some respite.

    I hope things improve too, not sure my patience will last, I am getting very snappy. 

    Gina

  • I'm not surprised you are getting snappy.

    Can't remember now about the Riveroxiban, probably were making me sick (or was it my fingers down my throat).  Hmm... (Joking).

    Hope you are nice and calm now.  Have yourself a Gin if there's any left.

    As you know only too well, you don't get anywhere by not saying anything.  You have to shout and make everyone aware. 

    Steve (SteveCam)

  • Oh cripes, hope the Riveroxiban doesn't make him sick, don't want to have to clear that up as well!

    There will be a large whisky approaching my throat at 6.50. I have a strict policy to not have a drink before that time, otherwise I would be too pissed to get dinner Laughing. We always eat late. It is a habit from when we lived in Surrey and both worked in London. We often didn't get home till 7.30 or 8.00 so 8.30 is our normal meal time.

    R has discovered another symptom now.  He starts eating, at least he has a bit more of an appetite, but then he says the food feels stuck and then he burps for Britain for about 5 mins. I think now he is suffering from Dyspepsia!! Oh well, why not add to everything else. He has had all the checks and endoscopies and they can't find anything. I love food and love cooking so it is very off putting when sitting down to a meal with the sound of a bull frog emitting from the table and pushing the food away. 

    G