Not sure if I am duplicating this on another part of the site, but my husband (77) was diagnosed with advanced prostate cancer about a year ago. He has multiple bone mets throughout the skeleton and whilst initially on Firmagon (hormone therapy), he has changed to Prostap as he had too much pain from the first.
He has bladder incontinence which is manageable by wearing pads but has been having often uncontrollable diarrhea every day for nearly four months. He has had an endoscopy and a colonoscopy so far and oncology say nothing to do with the cancer. He recently had an MRI to rule out spinal compression and a contrast ct scan. Nothing sinister found that they didn't already know.
However, my biggest worry is that he can no longer can eat. I have tried everything, obviously including his favourite foods. He can manage sweet things like fruit, yoghurt and soft deserts but he just cannot mange more than a couple of mouthfuls of any savoury food and is having Energy drinks supplied by the doctor.
My questions are, do other sufferers have bad diarrhea and is total lack of appetite and inability to eat normal. He is going downhill so fast and also getting dehydrated too. I am at my wits end trying to help him.
I have been in Norfolk on the coast with my two daughters and grandchildren. We had the most glorious week and it is the first holiday (if you can call it a holiday with four grandchildren) for me for two years. We have been going every year, just a week of us girls and it is a real bonding exercise, we love it. However, Richard ended up in hospital on the Wednesday. His legs were really swollen and he had an INR check in the morning. I told him to ask the nurse about the swelling and, long story short, he was admitted for a couple of nights with pulmonary oedema! He was put on intravenous diuretics and oxygen. He came home on Friday and his legs are now normal size thankfully. They blame it on heart failure. It seems one step forward and two back. He was responding so well on the steroids, but this has been yet another knock back. We have an endoscopy consultant appointment Wed to talk about the polyps they found in his oesophogus. Not sure there is an area on his body which actually is in good health.
I am still on the cold water bottle under the pillow trick to sleep now I am back in my bed, but in the static caravan, it cooled down quite quickly at night and was quite bearable. However, having a bed now is luxury compared to the sofa I have to sleep on in Norfolk. Hope all goes well at your meeting tomorrow and I will listen out for earthquakes in 6 days to come!!
Best regards
Gina
Gina, you had a H......., I can't manage to say it, try again, Ho...... No, can't do it.
Wow, did you have some great weather? I'm trying not to complain about the heat, don't know when we'll get it back again.
When I was about 4, I went to Whitley Bay with my Mam and Nana, that was it for my holidays. Didn't have a real holiday until I was 19.
Good luck for Richard on Wednesday at the hospital, my Oesophagus is playing up again, 2 days from 3 now I have basically choked on my food.
I'll have to remember to say something about it next Monday, it's the same specialist, does both cameras, just a quick wipe and there you go. Ugh!!!
Today should be a formality with the Oncologist .
Will let you know how it goes.
Earthquake day T-6
Steve (SteveCam)
Gina, I can't count, it's T-5
Then to cap it all off, I have to go on a low fibre diet after Wednesday, allegedly to make things easier. Not for me though, most of what I eat and like to eat is full of fibre.
Yes it makes me full of ****, but it's all mine.
And if that wasn't enough, l can't have anything to eat from 9am Sunday to around midday on Monday. I will lose about 3 stone in weight (I wish).
But as you can see, I am not complaining!!! Who me?
Steve (SteveCam)
Hi Steve, I'm a veggie since 1981, a touch on the windy side, but never blocked up, had the camera shoved up a few year's ago, slightly uncomfortable, ( don't know how gay guy's think it's a pleasure), told I couldn't leave the wating room until I'd farted, mixed company all waiting to fart and go home.
I'm a lot closer to you than Gina will feel the quake no problem.
Gina, don't believe Michael Fish, he knows nothing.
Back from the Oncologist's, happy with everything, just keeping me on PSA surveillance every 6 months.
He warned me that my PSA levels may rise in 6-8 months time when my friend the Testosterone machine starts up again.
Knowing my luck it will be a damp squib.
Do you know what a Smoggy or a Sand Dancer is?
Steve (SteveCam)
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007