Not sure if I am duplicating this on another part of the site, but my husband (77) was diagnosed with advanced prostate cancer about a year ago. He has multiple bone mets throughout the skeleton and whilst initially on Firmagon (hormone therapy), he has changed to Prostap as he had too much pain from the first.
He has bladder incontinence which is manageable by wearing pads but has been having often uncontrollable diarrhea every day for nearly four months. He has had an endoscopy and a colonoscopy so far and oncology say nothing to do with the cancer. He recently had an MRI to rule out spinal compression and a contrast ct scan. Nothing sinister found that they didn't already know.
However, my biggest worry is that he can no longer can eat. I have tried everything, obviously including his favourite foods. He can manage sweet things like fruit, yoghurt and soft deserts but he just cannot mange more than a couple of mouthfuls of any savoury food and is having Energy drinks supplied by the doctor.
My questions are, do other sufferers have bad diarrhea and is total lack of appetite and inability to eat normal. He is going downhill so fast and also getting dehydrated too. I am at my wits end trying to help him.
Hi Steve,
Hysterical but funnily enough, after all the potions Richard had to take prior to his three colonoscopies, we waited for the fall out but it was a slow progress each time and not the blasts we expected. I think the blue touch paper was damp when it was lit.
He had his first steroid this morning, so I am keeping my fingers crossed. He did manage have a chocolate eclair this afternoon, so some progress!
Best regards
Gina
Gina,
Glad to hear your husband had the eclair. Did he keep it down ok? (I know it's not nice to ask, but I get it all the time).
I see my specialist Dr Dipper this afternoon, about my Oesophagus and the Colonoscopy he's performing in August.
On my first Radiation session last October, the Enema I took was a dud. I was waiting and waiting and waiting... Not so much as a murmur.
Hope things still go well, he'll be eating Sunday dinners soon
Steve (SteveCam)
He managed half and luckily it stayed down. I made him a smoothie this morning with some frozen fruit which I hoped would be palatable enough we he drank and then said he felt a bit sick. He wasn't though but weirdly his tastebuds are also all to pot. For a chap who has a very sweet tooth, he keeps complaining of things being too sweet for him, even when they are not really.
That name is so funny, Dr Dipper , especialy as he goes down the throat. Richard has gastritis and oesophagul polyps but I cannot see any way they would operate at the moment as he is too weak.
Please let me know how you got on this afternoon.
Gina
Gina,
Yesterday was okay thanks, I told the doctor about my continuing saga with the food getting stuck. It has helped a bit since he prescribed Peptic (a strong Gaviscon type liquid).
All of my Endoscopy results came back clear, so in August when he does my Colonoscopy we will discuss this further and he said that he might possibly put me back on a lower dosage of Budesonide.
Hope Richard is improving.
Steve (SteveCam)
Hi Steve, well good news that it was clear and let's hope that the colonoscopy is too.
Slight improvement today. He actually had some grapes and a few tiny squares of cheese. However, he then says he is full up and I cannot get him to eat any more. Still, better than nothing.
Cheers,
Gina
Hi Steve,
At least it is not long to go for your procedure and they do give you a report when it is over. If there are no large polyps then that is good and if there are some small ones, they can usually remove them. You have had these awful "up the bum" jobs, as we call, them before, so at least it is not something you haven't experienced. Richard found the "down the throat" one much more uncomfortable. I gag if I have to give a throat swab, so goodness knows how I would cope. I had to have two back teeth out at the hospital last August, as it was rather complicated, so like the ultimate coward I opted for sedation. Blimey, I would have that every time in the future. Just a squirt of some liquid, on a comfortable bed/table thingy, and two of them fumbling around in my mouth. They could have been digging for gold and I would not have cared. I wish giving birth twice was as easy as that .
Have a good weekend
Keep positive and cheerful
Gina
Gina,
I think it was my 4th Camera down the throat. It was like swallowing a sword. Plus loads of biopsies. Afterwards, for ages it felt like gravel was stuck in my throat (don't eat gravel I can hear you say)!
That set my throat off again, just as the Budesonide had calmed it down.
Think I will opt for the anaesthetic for the Colonoscopy. It's bad enough someone sticking a camera in!
Hope I haven't put you off your breakfast.
PS: I started my Pelvic Floor Exercises yesterday, only about 9 months late! Can only hold the long ones for 2 seconds.
Steve (SteveCam)
Morning Gina,
Hope your weekend went well.
I have always been paranoid about Covid, last weekend was only the 2nd time I haven't put on a face mask since the first lockdown in 2020.
Me and my partner still haven't been out anywhere in over 2 years. It sounds worse than it is.
Basically we've only been to the shops, hospital appointments and me been to work
It does sound worse doesn't it!
Anyway...
Steve (SteveCam)
Gina,
How did your weekend go? Is Richard still eating?
Lots of questions...
How are you coping? If you can just be there for Richard he will appreciate it. I know I did with my partner, when I couldn't talk to anyone else, I knew I could ask her.
Going through my old diaries from last year, the 26th June, I might have been my lowest.
It was scary to read. I won't go into details.
I'm so glad now that I kept going with the diaries. A lot of it is rubbish and ranting. A good escape and place to put the world to rights.
Waffling again... better go.
Take care of yourself and Richard.
Steve (SteveCam)
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