Not sure if I am duplicating this on another part of the site, but my husband (77) was diagnosed with advanced prostate cancer about a year ago. He has multiple bone mets throughout the skeleton and whilst initially on Firmagon (hormone therapy), he has changed to Prostap as he had too much pain from the first.
He has bladder incontinence which is manageable by wearing pads but has been having often uncontrollable diarrhea every day for nearly four months. He has had an endoscopy and a colonoscopy so far and oncology say nothing to do with the cancer. He recently had an MRI to rule out spinal compression and a contrast ct scan. Nothing sinister found that they didn't already know.
However, my biggest worry is that he can no longer can eat. I have tried everything, obviously including his favourite foods. He can manage sweet things like fruit, yoghurt and soft deserts but he just cannot mange more than a couple of mouthfuls of any savoury food and is having Energy drinks supplied by the doctor.
My questions are, do other sufferers have bad diarrhea and is total lack of appetite and inability to eat normal. He is going downhill so fast and also getting dehydrated too. I am at my wits end trying to help him.
Gina,
Your comment about Richard having the room hermetically sealed had me in stitches.
On Sunday I had a mammoth Hot 
Flush from about 3pm until after 3am this morning.
In fact as I am writing this now I can feel it starting again. Like a bloody volcano 
waiting to erupt!!!
And I thought that they would start tailing off, some chance eh!!!
Anyway hope you both had a good weekend.
Steve (SteveCam)
Gina,
Just checking in to see how you both are.
All of the hot weather feels like a world away. Back to doom and gloom weather. Well it's England, what do you expect?
I get my 6 monthly PSA levels checked today. Fingers crossed 
it's still under 2.
I'm not overly concerned, especially when my Testosterone machine is still 'Out of Order'.
Steve (SteveCam)
Hi Steve
We are good. Glad you laughed.
Yes, hasn't it got all gloomy. I went out for walks and lunch with a friend today and it was warm but dull. Sidney and Betty weren't bothered and loved their walk along the canal with my friend's springer spaniel. We had some rain last night but not enough to stop my having to water all my pots tonight 
Richard's doc is back from holiday having had three weeks in Tuscany (okay for some)! He is trying to find out how he is doing now on the Budesonide. He would not think it was the same person he saw before he went away when he sees him. He is asking me for the dosage etc??? I wonder sometimes who is the doctor and who is the carer. I made a note somewhere and now have to search for it. I am sure it was 8 weeks on 9mg, 4 on 6mg and 2 on 3mg. What was your dosage if you can remember and did you decrease the same way?
He is going to need to reduce the steroids as he is eating me out of house and home!! When the doc last visited, he signed him off as "house bound". He is now out driving, we had lunch out yesterday (first time in weeks) and he is seeing a friend for lunch tomorrow. The change is totally amazing.
Have you had your psa result yet and if not, when do you get it? Do they think the testosterone will increase again if you are off the injections? If so, is that safe and will it mean you will stop making scones. There are ups and downs to every story (scuse the pun!!) 
Best regards
Gina
