Update on my husband

Hi Maria , sorry to hear about your husband. 

Like your husband I'm a T4 n1 m1 Gleason 8 diagnosed at 55. I've been told that both radiotherapy and chemotherapy are options for me so I don't understand why your husband based upon what you've said would be told NO to theses treatments. 

I'm on Decapeptyl 3 monthly injections along with Xtandi 160mg daily with very little side effects, just the odd hot flashe and slight tiredness at times. I'd go back to your oncologist and ask about trying Xtandi unless he's already tried it. 

There's plenty more options out there to explore treatment wise , so I wouldn't be sitting back and taking no for an answer.

Take care , stay positive and fight on

Hi Thanks for your response  we where told that chemo radiotherapy and other treatments would be available and after and mdp meeting chemo was still a possibility however once Keith’s biopsy results came back it was no longer an option I try to stay positive for keith however I think I know what’s a head for us and it terrifies me we watched our son battle acute lymphoblastic leukaemia for 4 yeaLes came close to loosing him a few times and just to keep us on our toes I was diagnosed with triple negative breast cance that had spread to nodes but we where given odds and a chance to fight Keith hasnt it’s a hard pil to swallow xx

Hi Topcat his last two where 3.8 and 2.7 thank you so much any advice help greatly appreciated 

Hello Maria, so sorry to hear what you and your husband are going through. Like Ghostly i dont understand why treatment has been withdrawn, i was diagnosed with advanced metastatic PC gleason 9 last march with spreads to my spine and pelvis. I am on 6 monthly Decepaptyl injections, daily Enzalutamide and monthly Zoledronic acid bone infusions and have had RT to spine, prostate and chest(to reduce pain from breast swelling) i have been told that Chemo will be my next treatment so as Ghostly says i would go back and ask for Enzalutamide, brand name Xtandi or at the very least an explanation. Take care and good luck. 

Hi Mariasusan,

im in the same boat as you.. my husband stage 4 with bone, lymph and tiny  lung mets that seem to have resolved. 
treatment is Prostap 3 injections and Arbiterone a life extending drug for stage 4 people. 
His PSA went from 44 to 0 then 0.1 two weeks ago. We were also told chemo and radiotherapy not an option. My husband is 71 and is very active.  Also worry that he should be offered more. May I ask where in the UK you are? We are west coast of Scotland.

I honesty don’t know how you are still standing with all the cancer in the family. Sending you much love and a huge hug!

louli x

Hi thanks fir your message we live in Newcastle sending love and straight back to you xx

Hug’s 

Well stay in touch lovely. I will be thinking about you lots Mariasusan…

Loulix