Abiraterone or Enzalutamide

Hi Joe. I read your bio. My goodness you have been and are still going through it. I wish you and your wife well. What else can we say only keep going. Since my husband was diagnosed life has taken a completely different tone. In one way it's actually enriching because you realise how every day is a gift but it's also a daily cloud. I meditate and have trained in hypnotherapy so i keep myself busy on top of the day job. 

My husband is very matter of fact and practical and is doing amazingly well but I know he's scared. He used to be a triathlete and did Iron Man competitions and he often says he'd loved to do another one but he gets breathless going up the stairs. It breaks my heart. 

Thank you for your reply. 

Jane x

Hi Chris. I can understand why your husband could find the online chats depressing. Each to his own and people feel differently about 'stuff' no matter how well we know them.  As I mentioned in my reply to Joe, I do meditate which has helped a lot. I follow the work of Dr Joe Dispenza (he's not a medical doctor) who has done amazing work in the field of helping people create a new future by thought alone. I know that might seem very woo woo but it has helped me to think more positively and feel more positively and that the Universe will support us. 

Nobody at work has any idea of my personal situation with my husband and in a way I don't want them to know. I don't want people feeling sorry for me.I would love to work from home and have more time to do housework and chores etc but work is not amenable to that. If i explained the situation they would have to consider it but I just don't want to open that can of worms, not for now anyhow. 

Yes my husband has been doing well on Abiraterone. So far so good and his psa is negligible.

It's so frustrating about holidays. I would so love to travel and go to the sun for 10 days but my husband would find it exhausting. Although he works he does suffer with fatigue which flattens him. 

I wish you and your hubby well with the results of the CT scan. It is good they have a few options. Treatments are improving all the time. 

Hugs. X

Jane 

Hi Dave my husband have advanced prostate cancer including lymph nodes he started on monthly injection and was offered enzelupamide unfortunately it had to be stopped within a wee as he developed a real bad rash apparently 1 in 10 men it hope it goes well for you Dave 

best wishes maria

A point to remember is that you can take Abiraterone after Enzalutamide, if the former starts to fail - but not the other way around. Enzalutamide might make you more tired but Abiraterone is taken with a steroid which of course also has side effects.   

Hi Maria, thanks for your reply. Everything crossed here.

Take care

Dave C

Thanks for the positive post. I should be starting very soon and will post my progress.

Thanks

Dave C

Most people get on fine with Enzalutamide. I deal with the side effects by keeping active eg gym 3 times a week. Hot flushes and some rashes are normal but if it's keeping me alive then it's a no brainer. And then there is always Abiraterone or other new drugs to fall back on.

Best

Arthur 

Hi, JCoff,
It's tough for us men but I know it's tough for our partners too. My wife shares the dark days and has her own too. I'm 64 and was diagnosed with late stage 3 metastasing PC 13 months ago. It's spread up my spine and elsewhere. Gods, it's been a year, but I know it has been no better or worse than so many people here.  (I'm on Enzalutamide), and so far so good.
I'm so sorry you're having a hard time, and it is hard to keep this damned thing and the treatment out of your mind day by day. All I can suggest is to live the most normal life you want to, roll with it, accept life will be different from now on.
Today I woke full of energy and got on with things, by 2pm I was done, exhausted, but I got some things done, and this evening I'll do a bit more.

If you want to keep it quiet, do so, but I will say what hugely helped for us emotionally was telling anyone and everyone. Yes, it's hard to spread bad news, but it made us realise what an amazing amount of love and support there was out there for us, and that was, and continues to be, an enormous comfort.

My best wishes to you both.

David

I am just entering my 3rd week on Enza now and my only "gripe" if you could call it that is a slight increase in pain in my bones.

Other than that I've been fine with literally no change.

Can I also just say to Chaps how great it is to hear of an 11 year PCa veteran!

Myself and my family are praying for 3-5 years and hoping beyond hope (and all statistics) to get to 10.

So to hear of 11 years and I've read on another forum of 26 years, is a big boost, so thank you for sharing.

Hi, Thanks for your comment about my 11 years and that it provides a boost. If I can help anyone it in turn helps me.

As it is for everyone the PCa diagnosis was completely bewildering and seeking help at first was difficult. I initially found the YANA site in the US and the support from the people on there was truly amazing.

I am now on this forum and Prostate Cancer UK.  My wife and 2 children have supported me beyond belief. Our kids  have also given us 4 grandchildren since my diagnosis. A true blessing.

During my Chemo last year I met a guy from my town who was having his second chemo and had also had secondary RT. He was about 22 years into this. Seemed pretty well.

Good luck to everyone.

Take care.

Dave C