Abiraterone or Enzalutamide

Hi there  thanks v much for your reply.   I don't want to think mine is a sob story but I tried for 3 years to get my GP to have me checked but  was fobbed off.  I was told I had BPH as I had no pain in my pelvis or front of my legs, well how wrong the GP was. I insisted on being referred to Urology and the res is history.  I was writing my Xmas cards when I got he phone call from Urology with newsI have Advanced PC. 

What annoys me is that there  are no posters or any information on PC in my surgery, there are posters for eveything else!   IMO Drs should offer a PSA test to all men over 60 year say. They dont even do the blood tests where I am, it is a nurse so they can't claim it is taking up their time.  Since my diagnosed 4 male friends have been tested but are ok. One had to push his DR for  PSA test which they did dobut he has low PSA.

One specialist reckons the men in my family carry a gene which causes PC as 4 of us all have it.

cheers and thanks again.

2

Just read your story on another page.  Interesting that you had the same problems as me in the beginning and I was told it was a  urine infection as I have a catheter & that we both got the same drugs: Tam and Fin.  When I got my first hormone injection the urology nurse phoned and told me to stop Finasteride. 

I'm still on Finasteride, won't change the cocktail of drugs im on as they are working.

Well that's me done for tonight I'm off to bed.

Hi Dunkeld99

I remember when I was told I had incurable PC, after going through all the chemo radiotherapy hormone injections, I was angry at my previous doctors for not picking it up. I had numerous blood tests not for PC, told them my father died of cancer but nothing, at the time I did not know about PC testing. But always relied on my doctor.

So I tried to Sue them, got all my records, not one firm would take the case on.

Sour grapes now but you might have a case, just a thought.

Stay safe

Joe

The medic's just close rank's, doctors don't make mistakes just bury their mistake 

You're right, considering how common PC is you'd hope it would be shouted about a bit more. It's getting there.

As I understand it, it's worth getting a PSA test in your 40s if there's a history in yoiur family, because it sets a baseline level for later tests. General PSA tests are so innacurate they are not very useful. That's changing, and it looks like general screening might actually start soon-ish. You can read more about it here.

All the best to you from a fellow man on the same journey.

Dave

Hi Dunkeld

Back in 2018 when diagnosed I had just 18 month previously been examined by the GP and had had a CT Scan with no indication or discussion about Prostate Cancer. I was concerned, well ore than concerned and spoke to the GP about the events. I challenged them to put a display in the surgery concerning men's health and prostate cancer as previously nothing existed. They did do this but then along came Covid and the display has been taken down. I guess you know the NHS do not see the PSA test as a screening for PC on the basis it raises too many false positives, in fact its all about money and resource.

I have updated my profile if any would like to review, now 5 years in and started Lutetium-177 treatment.

Spaceman  

Hi All,

I may have been lucky but my GP was brilliant. I saw him about urinary urgency. He took a sample and I was diagnosed with a pseudomonas infection and was put on anti biotics. He called me back a few days later and said he thought my presentation was a little strange so gave me a DRE. Things felt suspicious so he booked me to see a Urologist. 4 weeks later I had had all of the relevant scans and the journey began.

Take care everyone.

Dave C

Thank you for information