Skeletal metastases

Hi Moira,

I have just noticed that there have been no replies to your post.  Whilst I don't have any information that will answer your question, this reply will bump it back to the top of the list & hopefully someone will be along shortly who can help.

Best Wishes

Brian

Hi Moira ,Help 

sorry to read about your husbands results . I totally understand that you are panicking and reaching out on this forum. This group are great at reassuring and supporting each other .  I also cannot answer your questions someone will . 

just a suggestion if you have a local Maggie Centre attached to your local hospital it might be helpful to make contact . Both of us visit once a month and are supported by councillors. 

please keep in touch as even putting your thoughts on this forum helps 

best wishes & hugs 

Liz & OH xx

Hello Moira and Mike, my bone mets have been described as pretty widespread. I also started my treatment with Degarelix, but then I began triplet therapy with is Darolutamide tablets (second generation I.e. newer hormone therapy) and chemo. My PSA came down, but it was pretty slow and steady. All scans have shown that the cancer has slightly reduced and is now stable.

The bone mets caused me a bit of back and hip pain before and just when I was diagnosed, but this went after a month or so of the hormone injections, and I've been fine since (almost exactly 2 years ago). I take adcal, which is a calcium and vitamin D supplement as this helps with bone strength, and I keep active with the gym and strength training (weights) which evidence increasingly suggests really helps with cancer treatment effectiveness and tolerating side effects. 

Not sure about your husband's age or general health, but I really wouldn't worry about the widespread bone mets being particularly 'bad'. The main thing is that treatment is working - which a falling PSA does suggest. 

What has your husband's PSA come down to? Have you discussed an additional hormone therapy such as arbiterone, Darolutamide, enzalutimude? 

Thank you so much, have only just seen your reply and it’s really appreciated 

Goodmorning Moira, My husband has extensive bone mets, if you click on my name you will see our story.

He had his psa blood test yesterday ready for the oncologists call on Monday, I always hate this time but fingers crossed all OK this time.

Sheena

Thank you so much for your help/response, you have helped. Mike’s PSA has gone down to normal levels but the oncologist advised no additional hormone therapy due to other comorbidities (non alcoholic fatty liver disease and decompensated liver). So good to hear you are doing so well, sending you thanks and best wishes 

Thank you so much Sheena, sending you best wishes for Monday 

Hi Help , sorry I missed your original post.  You say a few bone mets only, do you know how many and where?  If it is just a few there is a RT technique which can target a few bone mets.  Might be worth a discussion once the current RT has finished.  David

Thank you Sheena, wishing you all the best for Monday 

Hello David, thanks for your reply but the scan reported widespread bone metastasis. Afraid to ask for more details as Mike is coping by switching off from it all, I’m not helping as I am full of anxiety