Father diagnosed with advanced prostate cancer with bone mets

Hi Asper, sorry to hear about your husband 

It's good that the PSA has come down, hormone therapy does have the effect of pushing the cancer into hibernation and this can last for many many years, that is why there is not much point in asking 'how long' because no one can say really but potentially a long time.

New treatments come along as well so it's always worth looking out for these, try cancerresearchuk for clinical trials.

Best wishes

Steve

Thanks very much Steve. I don't really think there's much point in asking how long either. For that reason - no one really knows which to be fair to him, our consultant does say. although not clearly enough. But my husband really wants a definitive figure, which I keep saying, no one can give him. I think it's the not knowing that he finds really tough. Thanks very much for the tip about the trials. He's very much up for that so we'll keep an eye out. Best wishes. 

I did ask how long and the oncologist said 5 to 7 years, based on current treatments. Certainly the Enzalutamide seems to have largely dealt with the original peeing symptoms. I have some mild pelvis pain and back pain but other than that all good and I feel I'm improving each day. I have extensive bone mets and it has spread to the lymph nodes. As of today I'm still waiting for my first PSA test post after starting Enzalutamide but I think its a bit of a super drug and I would be very surprised if it wasn't at acceptable levels.

So my take on all of this is the prognosis is pretty good all things considered, especially with these new drugs. Make the very best of the time you have left but that could be a very long time. Keep positive and looking forward.     

He can't have a figure which in my mind is better, stay positive and he could last for years, my oncologist told me that he has patients that are still alive 10 years after starting HT

Hello AsPer, this sounds very much like my consultant at clatter bridge Liverpool, I am curious if it could be the same one haha. I was obsessed with getting a prognosis after being told I would have less than 6 months if I did not start treatment straight away but my wife eventually got it through to me that it would not solve or change anything, and what if I got a really bad prognosis. Since then I have just got my head down and into the treatments and now am just resting after the last radio therapy session last week. I am to stay on hormone injections and enzulatimide and after a Christmas trip to tenerife I plan to go back to work in the new year. I have the mentality of living with not dying of cancer now. Don't get me wrong me and my family have been to some dark places but we are in a an ok place.at the minute, which is good enough for me. I wish you and your husband all the best