Nasty Back pain brilliant NHS

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Well I developed a very nasty back pain running down from the right SI joint to my right  hip and we all know that when you have Prostate cancer or any other cancer a new ache or pain is extremely worrying .Has it spread to my bones ? Eek !! . The pain had kept me awake for 4 nights on the trot, Naprozen did nothing to alleviate it , I found some out of date Co codimol and in despiration took one well it worked so I was out of pain whew.The next day I  emailed our amazing liaison oncology nurse she is fantastic and within an hour one of the specialised nurses had arranged a bed for me the next day in the oncology assessment ward at our large teaching hospital to have a check up ,and if  needed an overnight stay should they think I needed further investigation , hows that for service !  .They were very reassuring as all my blood tests are in their own words 'Super' no markers for indication of bone cancer ,PSA undetectable. So I dutifully turned up at 11 30 the next day in the assessment ward after first having a blood test .One and a half hours later I was home again with a carrier bag full of co codimol and laxatives, the consultant poked and prodded me in the relevant places all my blood markers were excellent still undetectable PSA ,no bone cancer markers .I had been mowing the lawn and had lifted some heavy shopping bags which could have caused a strain ,the Consultant said I'm due a scan anyway and they will look for arthritis so I will be getting a bone scan and MRI soon .She also told me that all men on ADT hormone therapy get muscle wastage and weaken ligaments so sprains and strains are par for the course but I should always contact them if I have any pains at all .I couldnt have been treated any faster or better if I had been a private patient .Our whole oncology department in Plymouth are wonderful and the treatment I have had from them has been excellent .The fact they put me on Enzalutimide as a first line salvage  treatment which I have been on for 16 months now and the RT I had at the beginning of the year means the cancer is now well controlled and possibly cured according to the main consultant (God ) who has been know to ring me up on a Sunday out of the blue to find out how I am. doing .All in all I have been exceptionally well supported by the whole team it helps that we have a large teaching hospital in Plymouth and COVID hasnt prevented cancer patients getting the treatment they needed here.

  • Hi

    I myself find my team really good at Salford Royal, if I have problems I get checked or scanned etc, although incurable, they do look after me I must see them around six or seven times a year, or when I have a problem. You’ve mentioned your back pain, I’m the same and I’m trying acupuncture, it might help not everyone’s cup of tea, but you never know.

    Stay safe

    Joe

  • University Hospitals Sussex (Worthing and Chichester) have also been great.  

  • Isnt  it reassuring in these times of supposed NHS struggles to see that at least the oncology departments in the hospitals mentioned are doing a great job .Not everyone has the same good experience but when it works well it works very well .

  • That's brilliant.  I was talking to an old colleague of mine who had robotic prostatectomy just a few months ago and he went through the system very quickly with good care even going back with catheter infections etc - some areas are very good others not so good - such a shame that not all areas are as good as yours and his - and obviously a lot of other peoples have great care.  This  care has been tremendous especially at this time of Covid.  Well done to the NHS - we know how brilliant they are and how over worked they are and sometimes they just pull out all the stops.