I am wondering if anyone knows if things have ground to a halt in urology departments due to Covid?
In Nov, husband (47) diagnosed cT2c, Gleeson 6, 3 positive cores out of 16 after targeted MRI and biopsy, decided to have radical prostatectomy which we haven't heard anything further about (that's to be expected). PSA in Oct 3.5, then in Dec 8! The only symptom that took him to the GP last year was pelvic pain which he's had for over a year and now he's complaining he feels it in his back, legs and fingers. Haven't had a bone scan as the diagnosis is low/intermediate risk. Correct me if I'm wrong but I don't think targeted MRI looks at the pelvic bones? Called the GP last week which was when we found out the Dec PSA test was 8. She sent a letter to the Consultant and said if we haven't heard in a week to call back. We didn't hear anything so she's chasing it up. Mentally it's tough as he's convinced he has bone mets and now I'm thinking we should go private for a scan. Radio silence is torture. Any experiences out there or advice about speeding up the process?
Hi
Sorry to hear about the worries your going through, I suppose each hospital is different, mine still keeps seeing people as best they can, some are frightened to go in because of the virus, but it does not make things easier for them.
First get on the phone to the urology dept, speak to the specialist nurses, if their not there leave a message they will rely, next push your doctor for a test ask for priority, do this for a handful of days, they will get back to you, if you have the name of the top person at the urology they have secretaries speak to them, always have your hospital number ready.
Believe me the more you push they will reply.
stay safe
Joe
Hi,
As we've been hearing on the news, waiting times have increased across the NHS as beds and resources have been diverted to Covid; and the severity does vary considerably between different hospitals.
However, cancer is cancer, even though prostate cancer is relatively 'slow', and I totally agree you should chase this up by whatever means you can. I agree with Joeven that the specialist nurse is a good place to start; have any letters from the hospital handy in case of questions.
On the brighter side, a T2C tumour, considered to be with such a low risk of metastases that a bone scan wasn't ordered, is most unlikely to have metastasised to back, legs and fingers over some 4 months. It may be worth considering other unrelated issues, but if you talk to anyone with cancer, they'll almost certainly admit to feeling metastases with any new sensation, however mild. It's only human, and that's the kind of vicious disease we're dealing with!
Good Luck!
- - -
Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
Areesha
MRI will show location and any spread although may need a bone scan as well.
Biopsy shows aggressiveness of cancer by way of a Gleeson score .
Steve
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