Palliative care at home - prognosis months

I hope you're clear that any predictions are  - at best - estimates; we're all different, and even though he's proved them right up to now, that doesn't mean he always will.

Also, don't wait for them to offer the 'there's not much else we can do' ; they probably won't. But I'd suggest contacting someone who has been closely involved in his care, whether GP, specialist nurse, hospice, and asking them to explain how things appear to them now.

From what you say, it's likely that things are in the late stages, and what they can do really involves his comfort. If he's having hospice care, that's their specialist area, so keep in close touch with them. If he isn't having hospice care (or Macmillan support), I suggest he should be.

Are there any specific problems that are worrying you, or is it the 'big picture'?

Thankyou for your reply. We are caught between what was end of life in hours two weeks ago and now palliative. Had a private chat with District nurse today and she is going to orchestrate a clearer revised path. Advice is to be persistent and challenge. All parties are well meaning but things change. Take care

Hello

First well done to you coming on here, you have more than enough on your plate seeing what is happening.

Being in this virus is the worst time to try and get help although it is there. Like Heinous has said, they will never give a time, I’ve heard of people on here given the same info, years later their still fighting.

56 is no age, it’s very sad, for you like my wife have watched me over well over four years worry and stress, my heart goes out to you, what was the last medication he was given ? I have gone onto my plan B which is Xtandi along with prostap, but was told there are a few trials out there that can be offered. Has he been offered any ? If no please ask ASAP as hopefully one may be made available to him.

I’ve said this many times, without you ladies supporting us, we would be in an even worse place, your doing a great job.

Keep safe

Joe

Hi I am so sorry my husband got home 24 th dec after a fight in same position diagnosed 18 months ago  xx I am also 56 have you tried pals x and the ot hospital was great x speak to person in charge of hospital 

unfortunately my hubby lost his fight on 30 th I am praying you get him home xx 

if you need anyone to talk to I am here I really unstandardised your battles 

the biggest hugs xx and love 

So sorry your husband lost his fight with this awful disease Sunsarah. 

. That is my fear. I’m 51 Partners go through so much. My heart goes out to you. It’s our partners which make this period manageable xx. I’d like to thank all partners especially mine for being there when I feel I don’t deserve it. Xx

Hi Sunsarah

So sorry for your loss. My dad was diagnosed with locally advanced prostate cancer in June 2019. We were told at the time that radiotherapy could treat the cancer/spread to pelvic lymph nodes but it spread to his ribs, spine and neck and there was a patch in his liver and he died on 7th September 2020. He was so ill and frail in the end. It’s great that so many can live for years with this disease but as we know, some aren’t so lucky. I can maybe imagine how hard your Christmas and New Year has been - I hope you’ve had some support. 

lots of love x

Hi Adviceseeker,

im so sorry you and your husband are going through this. 

I don’t know who is overseeing the palliative care (ie Macmillan), we had St Luke’s who weren’t really there for us when we needed them in a practical sense, although they came out and prescribed further medication - they would often just tell us uk ring the out of hours District Nurse team.

I hope you have a good gp as they should be able to put you I touch with the right support services.  For the last few days of my dad’s life, there were end of life carers at our home 24hrs a day as dad wanted to die at home. They couldn’t administer medication so they’d have to call the out of hours district nurses and, although my dad was supposed to be on the priority list, it still took them a couple of hours to come out. 

I hope you’ve got family who are able to support you through all this, physically and emotionally.

x