P is now getting painful muscle spasms in his back and round his ribs. They seem to relate to the stomach problems, in that they often follow on from a build-up of wind. He has a gastroscopy tomorrow, which I hope will tell us more. His calcium is also slightly up. I'm getting to my wit's end with all this - I can't stand seeing him in pain and neither of us is getting enough sleep. He sees the GP on Tues....should these symptoms be reported to the specialist nurse? P seems reluctant to do so - I'm scared it could relate to spinal cord compression, and don't know what to do for the best.
Hi linopartner speak to your specialist nurse, they can always tell you not to worry
He sees the GP on Tues....should these symptoms be reported to the specialist nurse?
I'd definitely tell them both; they may well be nothing to worry about, conceivably they are important.
Either way, the team need to know - and so do you.
- - -
Heinous
If I can't beat this, I'm going for the draw.
Meanwhile, my priority is to live while I have the option.
Always report everything - it could be nothing but it will put your mind at rest.
Hi
I relate to your P, I have two blown vertebrae and painful but I get by, the cramps are not great especially at bed time, keeping fit is a devil as exercise strains the muscles.
My wife is like you, for over four years she has watched how my pain has been indifferent and how I have watched the strain it has put on her. Without you ladies backing us, it would be a nightmare. We might suffer but you ladies are the heroes suffering as much as we do.
This disease affects everyone, trouble is a lot do not see the hurt people like you go through. I’ve had a gastroscopy tell him to have the anesthetic.
take care.
joe
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