Calcium

"The nurse administering his hormone injection said he must have sensitive bones" - shame on the nurse.

What does the GP say, bearing in mind that the cause may not be the hormones?

Hi

I start RT today of 35 sessions with 70 Gray.

I have declined ADT

I am Gleason 9 and after op my PSA was 0.08 it is now 0.20 so decied we had passed the safety level.

My PSMA PET was clean except for some inflammation around the suture.

May I ask what your husbands PSA levels were and his Gleason score.

Is RT the primary therapy or is it after a biochemical recurrence?

all the best for results and life after PC

His gleeson scale was 9 (5+4) and it was grade 5. Because of a heart condition he was unable to have an operation.  His PSA was 9.66. His primary therapy was 37 sessions of RD to the prostrate  and lymph area. He began hormone treatment on diagnosis. 

He is prescribed Adcal as I posted in an earlier message.

He was referred to rheumatology, because of the swelling go his hands and it confirmed that he does not have rheumatoid arthritis which is good news.  We still do not know what is causing the swelling and  pain although a private physiotherapist diagnosed thoracic output syndrome. 

We have been unable to contact his specialist nurse at the hospital. 

He is having another MRI ON 3RD October.

best wishes and good luck. 

I hope the MRI clears things up a bit. It sounds as though the hormones are not the cause of the swelling (and I can't think a reason why they should be) - but they may still be an indirect cause, by affecting his pre-existing heart condition. In his circumstances, the fatigue effects of the hormones, plus possible weight gain and reduced activity both should be taken seriously. Sounds like the Physio is on the ball (they usually are!).

Thank you...onwards and upwards