Nursing home ,

Hello Gena (Gena7) 

I am sorry to read your post although as you say it's probably the best place for Eddie and as he's settled then yes and "it's a lovely home too".

I think I know the answer to your question but you are better speaking to the experts who may wish to ask you some personal financial questions so:

You could post your question here in "Ask an information and support adviser":

 Ask an Information and Support Adviser 

But your best bet is to ring our Support Line where they will either be able to put you through to a specialist or get you set up with a call back. For this service the best time to call is 9am to 5pm Monday to Friday on 0808 808 00 00 (it's a free call).

I do hope you get the information you need.

Best wishes - Brian.

My deepest sympathy for such a situation. Who advised shouldn't return home? Who chose the care facilities? Are you paying from your assets, joint assets or his?

Is there not a case for pursuing "Continuing NHS Care" funding? It's often not available without a little argument. The prostate element at least is a medical not social need.

I think you need expert advice.

Take care of yourself.

Hi Gina ,

Hope you are doing ok as it’s life changing when your partner needs additional care . 

First and foremost  you need to speak to his Social Worker who has undertaken his assessment and they will advise as many care homes will accept those who are funded by local authority ( that’s what happens in Scotland ) .  

take care & hugs 

Liz & OH xxx

Hi Carl28 this is great advice.  We pursued this path for my Mum, who was also paying to stay in a lovely car home. To our surprise, the NHS took over the payments after 4 months on the basis of continuing NHS care due to Mum’s other ailments (heart failure).  God bless her - she only lasted another 3 months.  AW

Thankyou Brian , 

So sorry for your loss, 

Hi  Carl , I’m paying from his savings at the moment ,,,,then I suppose it will be my savings , it was the hospital Dementia team that advised and my daughter agreed , as he had hit 2 nurses at different times ,,, and wrecked a tv ,,, and the tea trolley once went hurling down the corridor, plus he actually” escaped” the hospital when a carer took him in the garden  ( summer) ,  I’m 80:and have bad arthritis in my feet hands and knees , but until he got that bad UTI in June I was coping ,. But they said I was at risk ,  he’s since been in hospital again with a UTI , he now has 3rd stage kidney failure which has caused a blockage to his bladder , I think the 2 UTIs has really progressed his alzimers  ( at least that’s what I think) , HE was assessed for funding,in July  and we were told he can walk ( shuffle) eat and breathe,  and so we pay , he’s now much calmer , but is doubly incontinent and  thinks the toilet is any wall / corner etc , we have looked at homes much cheaper but because HE WAS aggressive,,they won’t take him except one home ,,,,, but there’s no chance I would send him there it was dreadful , so I keep paying £2,000 a week , we don’t know how far the cancer has spread ,,other than we were told  it’s on 2 vertebrae and his left shoulder and right kidney that was in 2024, Hospital won’t do a scan because he’s refused all treatment so there would be no benefit , sorry for long winded reply Carl .

Hi Gena, I agree with Carl and you will need to pursue with someone either from the nursing home (nurse, home manage) to complete continuing health care checklist  as if his needs are intense and unpredictable he might qualify see this link (Brian,, Hope this is not going to put me on the naughty step) www.nhs.uk/.../. Take care 

Complex needs, a complex case to access Continuing Care, but surely worth pursuing. Bluntly,  he is mentally and physically unable to take care of himself and you cannot because of his violence and medical needs. Has he been formally diagnosed terminal, palliative only? 

Macmillan experts should be able to help with an appeal re Continuing Care.

But as I and others have said you need expert advice.

Sorry I can't be definitive.

Best wishes, Dave.

 zee11935efb 

Ha Ha . Thanks for the link - it's from a UK trusted source - you are saved from the "naughty step".

Thanks for your support.

Best wishes - Brian