I have been reading the various posts on the prostate cancer site for some years! I was first diagnosed 10 years ago and I am now 91. I have had various treatments over this time (radiotherapy 18 months ago, but not chemotherapy), and tablets such as bicalutamide and Enzalutamide 120mg and monthly Prostap. PSA was 179.
Everything was stopped (except Prostap) in July last year when the oncologost said the growth had spread outside the prostate and nothing was working anymore and prognosis was a few short months or weeks!! so no further consultations. It is now end of April and, not only am I still here, I am better now than I have been in some considerable time. I have very little pain and take 2 paracetamol 3/4 times in the day, but they are getting less needed. I walk 1 mile in half an hour every day now for exercise but have little energy for much else - no gardening for example. My wife reminds me, however, that I am 91 so no sympathy there!. I do not know what is going on, but I have stopped caring. My own Doctor is "confounded" but tells me whatever I am doing to keep on.
I write this, not to brag, but to try to reassure all who suffer advanced metastatic prostate cancer, like me, that there are many different diagnoses and they are not always right. My advice is Keep Active, Keep Positive - not easy I know, and Keep Smiling. there can be a light at the end of the tunnel.
