recently diagnosed!!

FormerMember
FormerMember
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Hello All,  New to this group/website.   i have just recently been diagnosed and has come as a shock as i am only 45 and very fit and active. Always thought this was an older guys cancer but obviously not. I only went  to the doctors for minor symptom and now resulted in where i am now!! It’s such early days and can hardly think straight or get it off my mind! Also keep getting over overwhelming with emotions. 

  • Hello gavbike.

    Everything you are describing is normal. I was diagnosed at 65 and I was still fit and active and couldn't believe what had happened to me. I was told not to let it get a grip of me but of course it did, every second of every minute of every day. Eventually you give yourself a break and start getting back to a semblance of normality. It happens to everyone and it will happen to you.

    I am sure you are on a treatment plan or you will be very soon. It is not an immediate death sentence, there are loads of treatments which either kill it or hold it back. I have gone years past my sell by date and I am not alone.

    There is a prostate cancer section on this forum, get on it and you will find plenty of reassurance and good advice.

    Best wishes.

  • Hello gavbike, sorry you have had to join our club! Welcome.

    I was diagnosed at 55 but was told I would have had it for many many years.

    It’s normal to feel overwhelmed and emotional so try to go with that for now. When you get a chance could you put some information in your profile? Tests and results so far etc. This will help fellow members help you.

    It might also be worth downloading the tooolkit from PCUK.

    You can find it here https://prostatecanceruk.org/media/2498706/prostate-cancer-a-guide-for-men-whove-just-been-diagnosed_ifm.pdf

    We are here to help you, take care.

    Ido4

  • Hi Gav

    as others have already said your feelings are normal, I do remember the shock that I felt when I was told that it was cancer.

    But I think slightly worse for you because of your very young age.. a lot depends on your diagnosis, do u have any stats, ie PSA, Gleeson, MRi report etc?

    The more info u can give possibly the more accurate advice can be given.

    Steve

  • . Hi I was diagnosed at 50 no symptoms. It’s a shock especially sitting in the waiting room which was full of so many older men.

    As mentioned all depends on location, Gleason score and extent of cancer. Take consultant advise and try and have a break from it.

    Regards

  • Hi gavbike, I see you’re PSA was 29 and you are on hormone therapy.

    Have you had an MRI followed by a biopsy yet? 
    Cheers,

    Ido4

  • Gav

    If all u have had is a psa test u can probably relax a bit.

    It would not really be possible to say that you had PC based on that alone. Raised psa could be other reasons than cancer.

    Steve

  • I was also diagnosed at 50, hormone therapy since last October, 5 of 6 chemotherapy sessions complete, next one in a couple of weeks following a six-week review (now by phone) so I'm unsure what will happen after that, but PSA on last test was down to 6.4 (from 880 at diagnosis) so it would appear that I'm on the right track. No major side effects such as nausea which I'm glad about, some hair loss and hot flushes from the hormone therapy.

  •   I'm in a similar boat. Lower psaand Gleason but spread to ribs. I also suffer with flushes not easy at this time. Take it easy I've got no energy so take care when you finish chemo, mine finished in Jan slowly returning to work but get very tired. Currently all my team working from home so I'm no different to anyone else.

  • Hi,

    I see you have a PSA of 29 and are waiting for a CT Scan You may also be given a MRI scan and then a biopsy.  All these will show  the extent of the cancer ie if it has spread outside the prostate.  As someone has already suggested it would be a good idea to get onto the Prostate Cancer UK website and download some of their useful pamphlets especially the Prostate Cancer Toolkit which is a collection of pamphlets for people at diagnosis.  There is also a telephone number to use and you can call the specialist prostate cancer nurses and ask them questions - they were invaluable to my wife and myself when I was diagnosed as could hardly ever get hold of people at the hospital other than my urologists secretary who was very good because her Dad had had prostate cancer so she knew quite a bit and could point me in the right direcetion.  Unfortunately I cannot find the card with the telephone number on at the moment but if you go to the website you will find the number it is an 0800 number so you don't pay for the call.  If I remember rightly they are available between 9 and 5 Mon, Tue,Thur, and Fri and on Wednesdays 8 until 6.

    Until all the tests and scans are completed then it will be hard to say what treatment plan will be offered to you.  Until then any questions you have we will try and answer here and also make use fo the fantastic information available in the pamphlets you can download on this site and on the Prostate Cancer UK website.