Recently diagnosed, Options

Hi Rongym and welcome.

Psa and Gleeson both low so that's a good start.

I would say the main criteria for staying on AS, I was on it for 4 years, is to take a look at the MRI report. How large is the tumour(s) and is it near to the capsule edge?

Of course the specialists should know about this and be advising u accordingly.

Braccy is a good option in your situation or external beam of course.

Either way looks like it's been caught early so should be curable.

Best wishes

Steve

Thanks for reply Steve. Unsure on size was sent to different specialist to have more intense biopsy but when we saw him he said wouldn’t do it due to enlargement of prostate and would guaranteed leaving hospital with catheter.

Due for second mri and biopsy in May. 

Was wondering if to go through with treatment As can’t be given anything for enlarged prostate to alleviate any symptoms.

Hi Rongym,

I'd go with what Steve said. And the consultant is probably right about the Braccy at this stage. Once you're getting regular surveillance I'd let sleeping dogs lie. When I was originally diagnosed it was because I couldn't stop wanting to go for a pee day and night. I only went to my GP because I thought I had an infection. Unfortunately for me it was too late and it had already spread. My Urologist prescribed Tamnexyl to relieve to need for a pee. To some extent it worked but not fully and I was still going to the loo during the night. I was following his advise and not drinking any liquid for the 2 hours before bedtime. Seeing I was still getting up to go to the loo, he also prescribed Betmiga for me. I now take both and I never get up at all during the night and I sleep for a good 7 hours. Ask him about it. I think they both relax the muscles in the bladder and the prostate.

Regards

John 

At your next appointment ask to see your MRI and ask where the tumour is situated as if it is close to the edge of the capsule it really is wise to have treatment sooner rather than later- before MRI I woudl have been put on active surveillance also but once the MRI was viewed and it could be seen that the tumour was close to the edge of the capsule and no one could be sure whether or not the cancer had spread outside the capsule that was changed.   It would also be wise to ask if brachytherapy is suitable for you once all the tests and especially MRI scans have been seen as in some cases Brachy is not suitable - for instance if you have already had a TURP procedure to laser away some of the prostate to free up pressure on the urethra (as I had done in 2004) and if you have low flow so I am told - though maybe these days this does not apply as things change and it is 4 years since I was researching these treatments. So always best to check this out.

I was also having to get up during the night several times, but not any more. I haven't drunk any alcohol for more than 18 months but started drinking coffee again about six weeks ago. The recommended fluid intake is 1.5 - 2 litres per day and I keep mine at about 2 litres and do not drink anything after 6pm! I know it sounds a bit geeky but I always use the same mug (300ml) and the same glass for water (180ml) so I know exactly how much fluid I have taken in. Two mugs of Redbush tea first thing in the morning, two mugs of coffee at breakfast and one mug of Turmeric tea after lunch. No more than three glasses of water during the day and that's my 2 litres. I will take some extra water after rowing or my aerobics class, but try to keep it to a minimum just enough to slake my thirst.

Nothing after 6pm (4 - 5 hours before retiring)  and I can go right through the night without getting up for a pee. I'm afraid it's a bit of a strict regime but it's been working for me for about two months now.