Husbands prostate cancer

Hi N

This all looks a bit of a muddle, I had to read a few times to try and understand.

It does seem surprising that with a very low psa the cancer has spread and I think that the specialists are mystified as well.

There seems to be confusion regards biopsy results, you say that they called u yesterday and ruled out PC, is that from the biopsy result?

I think that your need to get some more clarification about the biopsy result, do they have it or not, would seem unlikely as it was only done on Wednesday, in which case wait for those results as hopefully that will tell u more about what's going on. Also, has he had a bone scan?

Regards

Steve

Hi Steve sorry if confusion given I'm in a bit of a state at minute I will try and clarify . The oncologists think even though PSA low it is PC but needed biopsy to be sure . The Dr said they ask for PC to be tested first he says if not biopsy results take longer . Biopsy done Wednesday at 9.am .Yesterday dr rang to say he would get appointment for Monday to see him with a view of plan and RT also says he would get appointment for Thursday with consultant about chemo husband didn't ask any questions as I was out . Someone rang and said 3 pm Monday at Radiotherapy suite but then the dr rang and ask if we had appointment for Monday said we had so he ask for him to be there at 2 so he could discuss things then at 3 pm gphe would have RT . Husband ask if he knew what cancer it was he said he hadn't got all results back but hopefully by Monday he would . I am confused as to why only some results back as he says they had meeting and spoke about RT ,Chemo and planning .As I said I ask if at the meeting they all thought it was PC and Dr said yes because of how it presents but when I said consultant assured us nothing would happen on HT he said could be a different mutation .So as I say yesterday morning he says one thing rings back says another but no mention of Thursday's appointment . I'm so worried they not going to treat him and just do bit of RT for the backache sadly it's a double worry for us as our daughter more or less in same position her cancer second time round and they don't know where hers from and on chemo .

N

They did a biopsy 2 years ago and it was cancer but hadn't spread?

So where was the biopsy done this time, in the prostate again?

Steve

They took it from a lymph node in neck 

Wait and see what happens on Monday, should be clearer then.

With a psa of .07 it's hard to believe that the cancer has progressed to the bones. Specialist talks about a different mutation, I presume that he means a different cancer but not sure on that one perhaps others will post with their views.

Let us know how u get on next week

Steve

Dr said about different mutation when I said how the consultant told hubby that nothing would happen while on HT and even ask hubby if he had stopped having his injections !   As I said the Dr said that in MDT meeting it was their views that it was PC because of where it had spread and that results would be quicker if was PC and biopsy was only on Wednesday . A letter has arrived today giving him an appointment Thursday at Medical Oncology so Monday he sees Prostate Dr who has organised RT after although just had a text to say at 3 on Monday its a scan /X-ray which I believe is the one where they tattoo for RT so not sure if they do RT at same time . I feel they must know what it is to have these appointments already .They did test for Myloma which was negative so really really pray that they know what their doing but if it is PC I will certainly be having my say . Hubby X PSA when diagnosed 2 years ago was 6.4 and it was only when I read up on PSA I I badgered GP as they doubted anything was wrong .