Fatigue

FormerMember
FormerMember
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Hi guys, I was diagnosed last year with prostate cancer. I went on active surveillance as my son was ill in South Africa and I had to fly out to see him. Since then I have had 3 monthly checkups, and the last one showed my psa had moved from 15 to 18. I had another MRI which showed the cancer hadn’t moved but had a bone scan which was clear. My Gleeson has gone from 3-4 to 4-4, so they decided to start Hormone treatment. I am nearly at the end of my month on Bicalutamide tablets, and had first monthly injection of triptoraline 2 weeks ago. My problem is that I have never felt so tired and washed out in my life. It’s a real effort to do anything. Just wondered if anybody knows if I can do anything about it. I am due to have a ‘rebore’ op, and have had pre op and waiting for admission. Appreciate any help

  • Hi Paulalan sorry to hear of your situation.

    I didn't have hormone therapy myself but I do know that there can be many different side effects associated with this treatment , tiredness/fatigue being one of them.

    Try and do some excercise every day if possible this does help.

    You could also talk with your cancer centre or GP for advice.

    What is a 'rebore op', is this to do with the PC treatment?

    Hopefully someone will post who has been thru HT

    Regards

    Steve

  • FormerMember
    FormerMember in reply to Grundo

    Hi Steve,

    thanks for replying. The rebore is called a TURP. This is to widen the channel in my prostate to enable me to  wee properly and not so often. It’s about an hour operation and about three days in hospital. I gather it can take up to six weeks to get back to normal. They told me that the plan is to have twenty sessions of radiotherapy  and they will look to start it December or January. I haven’t seen an oncologist yet. They want to get op out of way first. I just hope I don’t carry on feeling so shattered, maybe it will improve after I stop the tablets on Tuesday, and just have the injections.

    take care.

    Paul

  • Hi Paulalan, fatigue is a listed side effect of HT. I found my body adjusted a bit over time  to the HT but sometimes there’s no escaping that feeling of exhaustion.

    I walk, play golf and try to keep as active as possible but also try to build in rests between activities. Steve is absolutely correct that maintaining a good level of activity actually helps reduce the fatigue. 

    The biggest problem I had and still have is poor sleep quality.

    Others will reply but a chat with a specialist nurse on Macmillan or PCUK might help too.

    This link might help https://prostatecanceruk.org/prostate-information/treatments/hormone-therapy

    Also still get hot flushes a couple of times a day but these are manageable.

    I was on PROSTAP for 2 years three months but still suffer after having my last jab.

    It takes time to leave the system.

    All the best,

    Ido4