it is looking like I will require HIFU surgery in the next month.
Id like to here anyones story concerning the tretnent and the recovery. anyone is welcome to tell your story. All input gretly appreciated
Hello steve
All I have been told at this stage is that there are some suspicious signs on the edge of the glad right beside where the nanonife procedure was carried out. My nanonife procedure was carried out on one side of the prostrate only.
size I have no idea.
My post nanonife psa at 3 months was 1 it has now risen to 1.7. In 12 months. It’s pretty likely that I have new cancer cells there.
bu***r. What a shame. So sorry to hear that.
Glasgow
If it's near the prostate capsule edge not sure if Hi Fu is the right option. Just in case some rogue cells had moved outside.
I was going to suggest Radiotherapy, just not too sure if that is possible after Nanoknife.
It could be worth asking and considering You obviously need the next treatment to do the job so important to get it right. In the meantime look on the bright side, biopsy may not find anything
Best wishes
Steve
I assume that u had to fund Nanoknife as I don't think it is available on Nhs?
So is the Hi Fu with the same hospital and are u again self funding?
Sorry , just my suspicious mind working overtime.
Steve
It has popped in my head a few times as I was told that the nanonife procedure would kill off all other cancer cells close by. Initially I was told I was not suitable to have it and then at my request I asked them to review that decision and low and behold I was well within their margins. Hmmmm Self funded but my insurance covers the specialists fees the anaesthetist fees but not the hospital nor procedure costs. In total from me including travel and hotels it was around £15,000. Worth it if it works. But here I am again. Perhaps back at ground zero. Again cheers Steve
Ok , so I'll just give my final thoughts and then shut up.
As u have just said , why has the PC returned so close to original site where u had the Nanoknife, surely there must be some overlap?
If ever there was a case for a second opinion this would be it, if all options are still open then RT may be better than Hi Fu. Hi Fu is not really a mainstream treatment and not too many stats available.
I know that u can't do much until after the biopsy so wait and see.
Steve
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007