Hi
How did you two meet ? And how long has he had the cancer ? There are a few of us with Advanced prostate cancer me included, although I am 67 my wife to is my carer she is 54 so age means nothing to me.
I have it in my bones as well, and know about the walking bit although my knees don't help, I've had it for three years and get tired and fatigued more and more, so I can imagine how you must feel watching some one decline, but if he's like me I laugh and try and play the odd prank on my wife anything to keep her from worrying about me.
Your doing the best you can so good for you and let's hope he carries on battling being positive always helps and I am sure he is.
Take care
Joe
Hi
We met on Facebook and met and that was it we fell in love straight away. He'd had prostate cancer 10years before I'd met him but the pill they put him on called Bicalutamide worked wonders he said until about 2years ago and he was sent to the Cancer hospital in Sheffield and we saw a Professor who put him on a trial which was 4 tablets a day called Enzalutamide which worked wonders for a few months but at the end of last year they told us they'd stopped working and to stop taking them and they put him on a steroid tablet which is helping steady the PSA level but last time we where there they said it had started to creep up again and if it went to a worrying level they would have him in for scans (which I dread). He has stents in both Kidneys as he was blocked he has to have them changed every 6 months.
But now with the cancer in the bones it's making it difficult for him to walk without pain so he's in a wheelchair when we go to the hospital. I don't drive yet which is abit hard but we keep happy he was on the stage when he was younger so he's got a great sense of humour and we laugh every day :)
Thank you for sharing your story with me.
Regards
Amy
Hi Amy
He is battling very well, he is a bit like me I take well to medication, and I know what a stents like abosoloutly terrible, I never got any sleep finally got it took out, but kidney stones had me doubled over in pain horrible things.
You have enough of a bottle with what you have, so looking after some one is a great credit to yourself, has he tried Aberaterone ? It works wonders with some people, there is also a drug for bone pain but with his age might not be safe.
Take care
Joe
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