Hi My name is bill,62 years old and diagnosed with prostrate cancer with a Gleason score of 4:5.
It is locally advanced but a scan has been done on my bones and this came back as negative,so it’s the prostrate and just outside it’s perimeter.
See the consultant on wed for treatment plan and would like some thoughts on people’s experiences when having surgery or radiotherapy as both have been talked about as solutions.
thanks
Hi My brother has had his results now from all the scans they have not found any signs anywhere else so this is very positive he is taking the hormone tablets now and will be starting on the radiotherapy in October. Hope your treatment is going well x
Very pleased his results are positive and starting his treatment I don’t see the surgeon till the 23rd so still in limbo on which way to go but after reading the things on here and elsewhere thinking very strongly of going radiotherapy route. Once again pleased on your OH results hope everything goes well for him and you.
Hi Chrissie,
Good to hear that there are no signs elsewhere. Good luck with the hormone therapy / RT.
I am about halfway through the hormone treatment prior to the start of RT (probably end of Sept) and the first few days after the second hormone injection have been quite a jolt in terms of side effects. It has taken a little getting used to and used up some emotional energy, so to speak - support of family has been important to me at this time. It's amazing how therapeutic hugs can be.
Good luck once again and kind regards
Steve
Thanks Entremet
it has been such a rollercoaster ride and my head has been spinning with all the different scenarios, so sorry i haven’t posted but the outcome of all the bone scans showed the cancer had not spread to the bones and the MRI showed no signs in the lymph nodes.
they where confident it was at the outer edge/just breaking through the shell of the prostrate and they recommended surgery.this led me to decide to get the cancer removed,rightly or wrongly I wanted this out of my body.
i had the surgery (Ralp) a week ago and surgeon said he he’d taken out the prostrate,some lymph nodes and it had a good margin ( I take this to the healthy tissue).
Being honest surgery wasn’t that bad and pain was manageable,at home chilling,sleeping and watching anything apart from day time tv.
i know I am a long way from being back to health and there is a road which can go down a good or bad path but let’s see what the future brings.
going next week to meet surgeon, get stitches and catheter removed .We will see what’s next on this journey but I am under no illusions it won’t stop there.
I will post to give an update and best wishes in your battle.
Thanks Bill
Hi mate
sorry to here that, the rollercoaster of prostrate cancer is a nightmare.
let’s try to put a bit of logic to this, mine was similar they said it was inside the the prostrate but I opted for surgery for two reasons, one after radiotherapy everything is fryed so if you have the operation at least you can then have radiotherapy after the op but not vice versa.
at least the surgeon told me he took as much of the cancer away including lymph nodes but unfortunately the nerves which has made me unable to have intercourse and never will had to be removed .
had the radiotherapy (30 sessions) but I have been told it had missed a few lymph nodes connected to my sternum and hips and small tumours have been detected there.. I now take hormone therapy and PSA is undetectable so unfortunately it’s a waiting game as to when the cancer becomes resistant to this treatment but there are others so who knows how long I have got. It does have a few after effects like tiredness and breast swelling but not any option so live every day as it comes.
in my opinion I want what ever is in my body removed and at least there is a heads up to what and how it has spread before you start other treatment. Biopsy of the Prostate gives you a good idea of the state of play where as radiotherapy only gives the results of scans. Sorry bud but only clear advice I can give you is keep you family and friends close and never dwell or lose the faith. Very easy to say but keep your head up
cheers bill
Some oncologists will operate after radiotherapy. My oncologist will do that for me If I have a recurrence but nearly 6 years on I doubt it will ever be needed. Only a few surgeons around who are capable of doing this but lucky that my oncologist was at a University Hospital is a Professor there and a pioneer of this.
Morning Bill.
I had a Gleason score of 6 but after a later scan it was raised to 7 (3:4), all my other scans came back negative, no spread. My main concern was that the cancer was on the perimeter and was showing signs of breaking through. I was told by my consultant that if I had radiotherapy and it did not work i would then have to have my prostate removed but it would be a much harder procedure as the areas around the prostate would have been damaged by the radiotherapy. To me it was a no brainer, remove the prostate, remove the cancer and this is what I did, everything went well and I am cancer free. Take care and stay strong.
Hi uguys
Similar but not exactly what I was told but I was always going to have the prostrate removed first even though the op and recovery is tough to say the least.
Gleason score of 9 and unfortunately after op and radiotherapy it had spread to hips and sternum.
Hormone treatment seems to be keeping it at bay and scans up to now show things haven’t changed and the PSA is undetectable.
Hormone treatment not the best but better than the alternative, so like you a no brainier.
stay positive yourself bud and take it easy
cheers bill
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