Hello all, I hope you are all keeping as best as can be We will obviously discuss this at next review with Urology but was hoping maybe someone here experienced the same Radiation finished mid May - 20 fractions, last Decaptyl injection on July...
Hello. My father is over 4 years post diagnosis. At end of June we were advised enzalutmide is no longer working and to stop it. Continuing prostap injection and given dexamrthasone. psa was 11.8 then and today it is 33. He is not a candidate for chemotherapy...
I was a regular blood donor up to my diagnosis when interventions and pending urgent surgery for a radical prostratectomy prevented me from donations. The surgery last June was successful and afterwards my PSA score was untraceable and has remained so...
Bit of history, started on Degaralix injections April 2024, swapped to Regulolix June 2025, Daralutamide from June 2024, 6 sessions of Docetaxel which finished November 2024. Had the usual fatigue but nothing I couldn't cope with, however since last...
Received a letter yesterday summarising my meeting with the urologist from last week. All as expected - except for the word cribriform which never came up at the meeting. I understand this isnt good news - no change there. I take farting without following...
Just back from latest consultation after being on Relugolix for the last six weeks. My PSA was down from 19.9 to 5.2 and the bone scan came back clear. Don't see the consultant again now until September and will find out about radiotherapy then. ...
My partner just started Enzalutamide for castrate resistant advanced prostste cancer which was diagnosed 4 years ago. He was treated with chemothersphy and radiation at the time and Decaptyl. He is currently in his 4th week of the drug and feeling very...
I wrote a thread a month or back on feeling abandoned by Oncology and having been discharged and referred back to my GP for monitoring. My latest PSA reading has come just now at 1.2 from 1.7. 3 months post radiotherapy and now 11 months into 24 of...
My partner has started getting quite nasty sciatica-type pain, as well as leg twitching - it seems as though the twitching then sets off the pain. He has mets in his bones, and we're assuming it's the pelvis that's pressing on a nerve - he had a spinal...
As many of you will know I have a melt down whenever hubby is waiting for test results. I know we need to get used to it and I really tried to not post about it this time but everything is going round and round in my brain and I can't seem to stop it...
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007