Hello all,
I hope you are all keeping as best as can be
We will obviously discuss this at next review with Urology but was hoping maybe someone here experienced the same
Radiation finished mid May - 20 fractions, last Decaptyl injection on July 7th, PSA last week 0.03 which is excellent & welcome
the issue is the injections, 6 months in and my husband is done with them - meant to be taking them for another year at least, but the weight gain, fatigue, sweats, low mood, no sex drive are really impacting his day to day, also waking with headaches?
had anyone ever not continued with the injections and would active surveillance be an option? Or are there other options we could ask about? He states the side effects are much worse than than RT
he is 55 and feels 90….. have tried many avenues to counteract all of the above with little success
original markers were PSA 16
Gleason 7 - extension into the seminal nerves no further spread to lymph or bones
Thank you in advance for any light you can shed on this
much love & warm hugs to you all on this journey
