Hi
my husband who is in his 40’s is having to have his prostate removed. Unfortunately this is going to be complicated surgery for him as he has a colostomy bag, no large bowel and alot of scar tissue. He has been told that he will likely have very small bladder control afterwards which will be permanent and Won’t just be a small bit when he coughs it will be alot. Has anyone had this, what advice for pads etc do you have? How do you live with it? What can I do to help him with this life changing thing. He has a colostomy bag which he is 100% fine with but I feel this is going to really knock his confidence
Good morning and welcome to this group. I am pretty sure that you wish you weren’t here, but you will find we are a welcoming bunch.
I am afraid that I don’t have this experience but by replying it keeps you at the top of the list. Other, more experienced, people will be along soon.
There is quite a bit of information that could be some help on this page from Prostate Cancer UK:
The most help should come from your surgical team who can point to specialist treatment.
There is also a lot of information on the NHS website, starting on this web page:
https://www.nhs.uk/conditions/urinary-incontinence/
One thing about this is that there is a lot of information. I have found, since diagnosis, that the more I understand, the more direct questions I can ask.
Others with real experience will be along soon.
Steve
Changed, but not diminished.
Hello Tulula09
I am so sorry to read of your husbands condition. Whilst I don't have the issues your husband has I have had an indwelling catheter for 10 months and understand some of the issues.
We do have another group you may wish to join and here's a link for you:
Ileostomy, colostomy, urostomy and any other stoma support
Just click on the link I have provided and it will take you there.
This post from a couple of years ago may help:
Pads and what you need to know
I feel sure once he's had the operation and you know how his condition is his team will be able to provided you with the appropriate help.
Best wishes - Brian.

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