Hi
my husband who is in his 40’s is having to have his prostate removed. Unfortunately this is going to be complicated surgery for him as he has a colostomy bag, no large bowel and alot of scar tissue. He has been told that he will likely have very small bladder control afterwards which will be permanent and Won’t just be a small bit when he coughs it will be alot. Has anyone had this, what advice for pads etc do you have? How do you live with it? What can I do to help him with this life changing thing. He has a colostomy bag which he is 100% fine with but I feel this is going to really knock his confidence
Good morning and welcome to this group. I am pretty sure that you wish you weren’t here, but you will find we are a welcoming bunch.
I am afraid that I don’t have this experience but by replying it keeps you at the top of the list. Other, more experienced, people will be along soon.
There is quite a bit of information that could be some help on this page from Prostate Cancer UK:
The most help should come from your surgical team who can point to specialist treatment.
There is also a lot of information on the NHS website, starting on this web page:
https://www.nhs.uk/conditions/urinary-incontinence/
One thing about this is that there is a lot of information. I have found, since diagnosis, that the more I understand, the more direct questions I can ask.
Others with real experience will be along soon.
Steve
Changed, but not diminished.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007