Diagnosed in June 23 – Stage 4 with mets, PSA 383
August 23 had 6 Docetaxel sessions and started 3 monthly Triptorelin injections
Started on Abiraterone and steroids in Nov 24
Had a break for 3 months in May 25 and restarted on half the previous dosage as the side effects were bad.
PSA is below 0.03 so it is obviously working but the side effects are still killing me
Constant muscle and joint pain
Occasional sharp 'stabbing' pain in various places
Constant Tiredness – only sleeping for 2 hours then wake up and try to get back to sleep
Muscle weakness
Lack of stamina
Sweating
Brain Fog
Low Haemoglobin(never recovered from chemo) used to be 145g/L now running around 120-124g/L – Iron tablets don't make any difference and I get enough B12 in my diet.
It's not low enough for the consultants to be concerned but it concerns me as I feel the lower reading is one of the causes of me feeling tired all the time
I still walk the dog twice a day – that's all I can manage at the moment. I used to be fit. Training in different martial arts over 50 years and have earned two third dans and a seventh dan over the years but there's no chance in going back to that
Spoke to the consultant yesterday and all they could do was suggest a break from Abiraterone but I would have to stay on the steroids so is it worth it.? For the amount of time I would be off Abiraterone only to know I was going to be going back on in a few months
How do other people on Abiraterone cope?
