Hi everyone.
My journey so far is listed in my profile but earlier this year in February I returned a PSA level of 10 which resulted in a 2nd biopsy, of which identified 1 of 25 biopsies showing low grade cancer with a Gleason score 3+3.
So the plan going forwards was active surveillance with PSA test every 4 to 6 months followed by review appointments and likely MRI scan every 12 month.
After my latest PSA test yesterday, I have just received a call from my GP concerned that my latest PSA level has increased to 20. My next review with the active surveillance team is not until 30th July.
I was hoping you guys may be able to provide some guidance on the likely next course of action from the hospital or any advice as to what I should be pushing for next i.e various scans/tests.
Many thanks in advance.
Hello Necam
PSA doubling in 4 months - not good. I will stick by my comments in my reply in this thread
You can now add an MRI and bone scan to this.
It's not an appointment with the AS team you need - it's one with urology and ASAP - you don't want any further PSA rise and risk the cancer going "walkabout".
Do let us know how you get on.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Neil (Necam )
There are 4 possibles I have listed
CT
MRI
PSMA-PET
Bone Scan
The best one is the PSMA-PET scan - that will find the cancer where ever it is in your body - but will probably refused on cost grounds (about £2750).
After that go for the MRI, to me the next best.
The CT (with contrast dye) and Bone scan should be offered anyway.
Here's a link for you:
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
