prostate fatigue

Hello Mike ( mike3561 ). Yes, your post is definitely in the right place…! I’m another G9 man and to be fair, fatigue really only hit me towards the end of the 20 fractions of radiotherapy. I had to push myself through that by going out for a walk each day when we got home - it would have been very easy to just sit down the rest of the day. A year later, still on hormone therapy, I’m walking a lot and lifting weights, and back to about 90% of my previous energy level.

I’m no expert but I do think increasing ‘normal’ exercise is key after diagnosis. Not always easy though…

You may also want to consider having a chat with your GP, and maybe asking for a blood test, see if there is anything they can do to help you. 

Hello Mike (mike3561 ) 

Another welcome to the group from me too, although I am so sorry to find you joining us. 

Sadly I am another member of the Gleason 9 club - I've been a member for 4.5 years and I agree with Amplitude my fatigue started about 6 months into my journey, when the Hormone Therapy took hold. Whilst I don't go to the gym or lift weights I do plenty of walking and this keeps me fairly fit.

I agree with Amplitude, you need to speak to your GP about the fatigue - I just wonder if it's linked to you being newly diagnosed and is part of the stress and anxiety that comes at the start of a cancer journey.

Stick with us, keep asking questions - nothing is too trivial, and do let us know how you get on.

Best wishes - Brian.

Hi  Amplitude. 

so good of you to reply. as i mentioned not started any treatment yet, until i see my oncolagist  on 7 july to discuss my pet scan results.  just suffering from fatigue so bad even  without treatment!   i don't  know if it as spread, but symptoms seem to think it as.  did yours spread  outside the prostate?  How long ago was your  diagnosis?  

hope all goes well with you,  take care. regards mike...

Hi brian,

so good of you to reply.  as i said not received any treatment yet,  until i find out from the doc on 7 july what my pet scan results show.  yet getting bad fatigue even before any treatment.  would be interested to know did you get fatigue before you got treatment?  and what other signs did you notice before you got  diagnosed?  did they give you any positive outlook for it? 

did yours spread outside? if so to where?  

thanks again for your reply, hope all goes well with your recovery.

kind regards mike..

Hello Mike. For me, from the initial high PSA result to starting hormone therapy was about 85 days. Should be within 62… Then another 6 months before starting radiotherapy, which is fairly normal. And yes, it was outside the prostate capsule and had spread into my pelvic lymph nodes. I was told, due to this, prostatectomy wasn’t possible. So I had full-pelvic radiotherapy covering the prostate, lymph nodes and seminal vesicles.

The high PSA result was in Aug ‘24, diagnosis tests were completed in late Nov ‘24 and radiotherapy finished mid-July ‘25.

If you would like to read my story so far just click on my name above, or the little circular picture (avatar). 

Hello Mike (mike3561 ) 

My personal journey is to say the least unusual - I don't fit into any group. No symptoms of prostate cancer and a PSA of 182 on diagnosis - although it was my eGFR t(Kidney Function) that rang the bells. My diagnosis is Gleason 9 (5+4) T3aN0M0 but I had a "dodgy shadow" on my pelvis on my MRI scan. As far as my team can tell - no spread.

I started treatment before any MDT meeting  - my urologist put me on HT from day 1 and as they say the rest is history - click on my name or avatar for the full journey details.

Yes I was tired before I ended up in hospital - but I thought that was old age - by the time I had been fitted with a catheter, had all my scans - in a week along with the biopsy and left hospital I was ready to fight the cancer -fatigue kicked in later.

Feel free to ask any questions -we are all different.

Best wishes - Brian.

Hi Mike 

I've never heard of fatigue before treatment  I'm 6 years down the line now and my pc is incurable  ...but treatable see my profile. I  post fairly often .All I will say is radiotherapy fatigue  is different from hormone treatment fatigue, in my experience. Main advice stay positive  you will get plenry of advice and support on this site. 

HI  Brian,

good of you to reply.  the thing is iv'e  had my on and of fatigue  coming up for 6 years.

only this last year a bit more than usual.  so was wondering is it anything to do with the prostate seems a long time dealing with it if it is. 

no pain so far big day next week to find out if ot's spread.  

and what, if any tretment to give.   hope your keeping well, all the best..

mike...

HI Amplitude.  

i just read your  informative story,   going through all that must have taking it's toll.

i noticed you didn't mention it spreading to your bones, so i'm assuming it didn't.

that's the one thing i'm hoping my pet scan shows it hasn't, will find out next week at my first meeting to discuss the results.

keep well

mike....

‘morning Mike,

I think, to be fair, each little bump was dealt with separately at the time. Even the diagnosis and the start of treatment for the pulmonary embolism was done within 12 hours.

The discussion with the oncology consultant and the diagnosis I saw only mentioned spread to the lymph nodes, although I was told the radiation would be extended to the seminal vesicles as well. I presume from what was said, as a ‘just in case’ measure. No bone issues were mentioned.

Hopefully your bone scan comes back clear. I, too, have a meeting at the cancer centre next week. I will keep my fingers crossed for better news for both of us…

Amplitude